Abstract

Purpose

To examine associations between fathers’ and mothers’ appraisals of family management and physical and emotional health-related quality of life (QOL) for young adult survivors of childhood brain tumors.

Design

Cross-sectional.

Sample

47 mothers and 39 fathers (39–67 years old); 47 survivors (18–33 years old)

Methods

Analyses evaluated relationships among family management (Survivor’s Daily Life, Condition Management Ability, Condition Management Effort, Family Life Difficulty, View of Condition Impact, Parental Mutuality), quality of life, and parental role.

Findings

Except for Parental Mutuality, family management ratings were not significantly different for mothers and fathers, and parental views of survivors’ physical and emotional QOL improved with better family management. Parental role moderated associations between physical and emotional QOL and Survivors’ Daily Life and between emotional QOL and Condition Management Ability, Condition Management Effort, and View of Condition Impact.

Implications for Psychosocial Providers

Assess and address survivor QOL through family management from multiple perspectives.

中文翻译：

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母亲和父亲对儿童脑肿瘤年轻成人幸存者的家庭管理和健康相关生活质量的看法

摘要

目的

研究父亲和母亲对家庭管理的评估与儿童脑肿瘤年轻成人幸存者的身心健康相关生活质量 (QOL) 之间的关联。

设计

横截面。

样本

47 位母亲和 39 位父亲（39-67 岁）；47 名幸存者（18-33 岁）

方法

分析评估了家庭管理（幸存者的日常生活、状况管理能力、状况管理努力、家庭生活困难、状况影响观、父母互惠）、生活质量和父母角色之间的关系。

发现

除父母互助外，母亲和父亲的家庭管理评分没有显着差异，父母对幸存者身心生活质量的看法随着家庭管理的改善而改善。父母角色调节了身体和情绪 QOL 与幸存者日常生活之间的关联，以及情绪 QOL 与状况管理能力、状况管理努力和状况影响观之间的关联。

对社会心理提供者的影响

通过家庭管理从多个角度评估和解决幸存者生活质量问题。