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Radical Pleasure: Feminist Digital Storytelling by, with, and for Women Living with HIV
Archives of Sexual Behavior ( IF 4.891 ) Pub Date : 2020-11-24 , DOI: 10.1007/s10508-020-01822-8
Allison Carter , Florence Anam , Margarite Sanchez , Juno Roche , S. T. Wynne , Just Stash , Kath Webster , Valerie Nicholson , Sophie Patterson , Angela Kaida

Despite the fact that HIV can be controlled with medication to undetectable levels where it cannot be passed on, stigmatization of women living with HIV persists. Such stigmatization pivots on stereotypes around sex and sexism and has force in women’s lives. Our aim was to create an inspirational resource for women living with HIV regarding sex, relationships, and sexuality: www.lifeandlovewithhiv.ca (launched in July 2018). This paper describes the development and mixed-method evaluation of our first year and a half activities. We situated our work within a participatory arts-based knowledge translation planning framework and used multiple data sources (Google Analytics, stories and comments on the website, team reflections over multiple meetings) to report on interim outcomes and impacts. In our first 1.5 years, we recruited and mentored 12 women living with HIV from around the world (Canada, Australia, New Zealand, Kenya, South Africa, Spain, Nigeria, and the U.S.) to write their own stories, with the support of a mentor/editor, as a way of regaining control of HIV narratives and asserting their right to have pleasurable, fulfilling, and safer sexual lives. Writers published 43 stories about pleasure, orgasm, bodies, identities, trauma, resilience, dating, disclosure, self-love, and motherhood. Our social media community grew to 1600, and our website received approximately 300 visits per month, most by women (70%) and people aged 25–44 years (65%), from more than 50 cities globally, with shifts in use and demographics over time. Qualitative data indicated the power of feminist digital storytelling for opportunity, access, validation, and healing, though not without risks. We offer recommendations to others interested in using arts-based digital methods to advance social equity in sexual health.



中文翻译:

激进的乐趣:由艾滋病毒携带者,与妇女一起以及为妇女而进行的女性主义数字故事

尽管可以通过药物将艾滋病毒控制到无法检测到的水平,以致无法继续传播,但感染艾滋病毒的妇女仍然受到歧视。这种污名化围绕围绕性别和性别歧视的陈规定型观念,对妇女的生活产生了影响。我们的目标是为艾滋病毒感染者的性,恋爱和性行为创造鼓舞人心的资源:www.lifeandlovewithhiv.ca(于2018年7月发布)。本文描述了我们第一年半活动的发展和混合方法评估。我们将工作置于基于参与式艺术的知识翻译计划框架之内,并使用多个数据源(Google Analytics(分析),网站上的故事和评论,多次会议的团队反思)报告中期成果和影响。在我们的前1.5年,在导师/编辑的支持下,我们从全球(加拿大,澳大利亚,新西兰,肯尼亚,南非,西班牙,尼日利亚和美国)招募并指导了12位艾滋病毒感染者,以撰写自己的故事,重新获得对HIV叙述的控制,并主张其享有愉悦,充实和安全的性生活的权利。作家发表了关于快乐,性高潮,身体,身份,创伤,韧性,约会,披露,自爱和母亲的43个故事。我们的社交媒体社区增加到1600个,我们的网站每月接受大约300次访问,其中大多数来自全球50多个城市,其中女性(70%)和25-44岁(65%)的人访问,并且使用和人口结构发生变化随着时间的推移。定性数据表明女权主义数字叙事对于机会,获取,验证和康复的力量,尽管并非没有风险。我们向有兴趣使用基于艺术的数字方法以促进性健康方面的社会公平的其他人提供建议。

更新日期:2020-12-23
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