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Disclosure and plan of care at end of life: Perspectives of people with intellectual disabilities and families in Ireland
British Journal of Learning Disabilities ( IF 1.238 ) Pub Date : 2020-07-30 , DOI: 10.1111/bld.12339
Kumaresan Cithambaram 1 , Mel Duffy 2 , Eileen Courtney 2
Affiliation  

Recently, more and more people with intellectual disabilities have been dying from life‐limiting conditions, and on many occasions, people with intellectual disabilities have not been informed of this. There is limited evidence concerning the views and opinions of this cohort regarding the information that is needed in order for decision‐making to occur at the end of life. Therefore, this study aimed to explore the perceptions of people with intellectual disabilities and families in terms of the information that is needed as part of end‐of‐life decision‐making.

中文翻译:

寿命终结时的披露和照护计划:爱尔兰智障人士和家庭的观点

近年来,越来越多的智障人士死于生命有限的状况,而且在许多情况下,智障人士还没有得到这一信息。关于这一群人对于在生命终结时进行决策所需的信息的观点和观点的证据有限。因此,本研究旨在根据生命终结决策所需的信息来探索对智障人士和家庭的看法。
更新日期:2020-07-30
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