This study examined parents’ perceptions of constraints that impact the attainment of independent walking in children with CHARGE syndrome. This syndrome is a multifaceted syndrome including a degree of vision and hearing loss at birth. The Dynamic Systems Theory (DST) was used as an ecological lens to provide insight into the complexity of issues impacting independent walking from the parents’ perceptions. Semi-structured interviews were administrated to 23 parents of children with CHARGE syndrome to ascertain the degree to which individual, environmental, or task constraints impacted their child’s development of independent walking. Data analysis was conducted through direct content analysis based on the DST. Parents reported that the task of walking was impacted by individual constraints, both structural and functional, and environmental constraints, such as space, surface area, and the use of furniture. Recommended interventions for professionals who work with children who are deafblind include manipulation and adaptation of environmental and task constraints.

中文翻译：

---

父母对影响 CHARGE 综合征儿童行走发展的约束的看法

这项研究调查了父母对影响 CHARGE 综合征儿童独立行走的限制的看法。这种综合征是一种多方面的综合征，包括出生时一定程度的视力和听力损失。动态系统理论 (DST) 被用作生态镜头，以从父母的看法中洞察影响独立行走的问题的复杂性。对 23 位 CHARGE 综合征儿童的父母进行了半结构化访谈，以确定个人、环境或任务限制对其儿童独立行走发展的影响程度。数据分析是通过基于 DST 的直接内容分析进行的。家长报告说，步行任务受到个人限制的影响，包括结构和功能，和环境限制，例如空间、表面积和家具的使用。为聋盲儿童工作的专业人员推荐的干预措施包括操纵和适应环境和任务限制。