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Burden and Treatment Satisfaction among Caregivers of Adolescents with Borderline Personality Disorder
Family Process ( IF 4.319 ) Pub Date : 2020-10-03 , DOI: 10.1111/famp.12593
Mie Sedoc Jørgensen 1, 2, 3 , Ole Jakob Storebø 1, 2, 4 , Stig Poulsen 5 , Erik Simonsen 2, 3
Affiliation  

Despite the fact that family involvement is encouraged in early interventions for borderline personality disorder (BPD), there is a limited knowledge on the experience of caring for adolescents with BPD. This is an exploratory retrospective study nested within a randomized controlled trial that compared mentalization-based treatment (MBT) in groups to treatment as usual for adolescents with BPD. Caregivers received six MBT-Parents sessions or standard care over one year. Three months after end of treatment (EOT), 75 caregivers (35 in MBT, 40 in TAU) filled out the Burden Assessment Scale, and 71 (34 in MBT, 37 in TAU) the Family Satisfaction Survey. The adolescents filled out the Borderline Personality Features Scale for Children at baseline and after twelve months at EOT. We tested whether caregiver demographics, adolescents’ severity of BPD, treatment and adolescents’ dropout from treatment predicted levels of caregiver burden and satisfaction with treatment. The caregivers reported high levels of burden on the BAS (M = 40.3, SD = 12.2). Our study suggests that higher BPD severity at EOT among the adolescents predicted caregiver burden (p = .03), whereas higher baseline BPD severity predicted satisfaction with treatment (p = .04) and that biological mothers could be more burdened than other types of caregivers but also might be more satisfied with treatment. Treatment and adolescents’ dropout from treatment were not related to caregiver burden or satisfaction with treatment. To help inform future research and to devise appropriate interventions for caregivers and adolescents with BPD, it is important to identify possible predictors of caregiver burden. The results of this initial exploratory study indicate that caregivers (and particularly biological mothers) of adolescents with more severe levels of BPD could be particularly vulnerable toward feelings of burden and therefore are in need of support.

中文翻译:

边缘性人格障碍青少年照顾者的负担和治疗满意度

尽管在边缘型人格障碍 (BPD) 的早期干预中鼓励家庭参与,但对照顾 BPD 青少年的经验知之甚少。这是一项嵌套在随机对照试验中的探索性回顾性研究,该试验比较了针对 BPD 青少年的心理化治疗 (MBT) 与常规治疗。照顾者在一年内接受了六次 MBT-Parents 课程或标准护理。治疗结束 (EOT) 后 3 个月,75 名护理人员(MBT 中 35 名,TAU 中 40 名)填写了负担评估量表,71 名(MBT 中 34 名,TAU 中 37 名)填写了家庭满意度调查。青少年在基线和 EOT 十二个月后填写了儿童的边缘人格特征量表。我们测试了看护者的人口统计数据、青少年 BPD 的严重程度、治疗和青少年退出治疗预测照顾者负担水平和对治疗的满意度。护理人员报告称 BAS 的负担很高(M = 40.3,标准差 = 12.2)。我们的研究表明,青少年 EOT 时较高的 BPD 严重程度可预测照顾者负担(p  = .03),而较高的基线 BPD 严重程度可预测对治疗的满意度(p = .04),并且亲生母亲可能比其他类型的照顾者负担更多,但也可能对治疗更满意。治疗和青少年退出治疗与照顾者负担或治疗满意度无关。为了帮助为未来的研究提供信息并为患有 BPD 的照顾者和青少年设计适当的干预措施,确定照顾者负担的可能预测因素非常重要。这项初步探索性研究的结果表明,患有更严重 BPD 水平的青少年的照顾者(尤其是亲生母亲)可能特别容易受到负担感,因此需要支持。
更新日期:2020-10-03
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