ABSTRACT

Background: This paper presents the findings from a qualitative research project that explored what ten people with intellectual disabilities who receive care and support in a residential care facility deem valuable for living a good life and what the opportunity to manage resources for care and support themselves means to them.

Method: With the use of photovoice, the 10 participants documented their care and support, and by extension, their own lives. We describe how the project was carried out and the facilitating and obstructing factors we encountered.

Results: The collected images and related personal stories teach us about the central importance of significant others to the lives of the participants and their vital role as “necessary others” who nurture a multitude of possibilities.

Conclusions: The increasing policy focus on independence and self-sufficiency is opposed to the vital role of relationships in the participants' view of a good life.

摘要

背景：本文介绍了一个定性研究项目的研究结果，该项目探索了在住宅护理机构中获得护理和支持的十名智障人士认为对过上美好生活有价值的东西，以及管理护理和支持自己的资源的机会意味着什么给他们。

方法： 10名参与者使用照相语音记录了他们的关心和支持，并扩展了他们自己的生活。我们描述了该项目的实施方式以及遇到的促进和阻碍因素。

结果：收集的图像和相关的个人故事告诉我们重要的他人对参与者的生活至关重要，以及他们作为“必要的他人”的重要角色，这些人培育了多种可能性。

结论：政策越来越关注独立性和自给自足，这与关系在参与者美好生活中的重要作用相反。