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Electronic Assessment and Tracking of Pain at Home: A Prospective Study in Children With Hematologic or Solid Tumors
Journal of Pediatric Hematology/Oncology Nursing ( IF 1.7 ) Pub Date : 2020-12-03 , DOI: 10.1177/1043454220975443
Emanuela Tiozzo 1 , Serena Fondi 1 , Valentina Biagioli 1 , Elisa Piccinelli 1 , Francesca Alibrandi 1 , Orsola Gawronski 1 , Immacolata Dall'Oglio 1 , Erika Margarella 1 , Simone Piga 1 , Riccardo Ricci 1 , Italo Ciaralli 1
Affiliation  

This study aimed to evaluate the intensity and characteristics of pain, which was assessed at home by children with cancer or their parents using an app for mobile devices, for a 1-month poststudy enrollment. The participants of this observational prospective study were outpatients at the hematology/oncology department of an academic hospital in Italy, aged between 0 and 21 years, and receiving hospital-at-home care. Patients or their parents were asked to assess pain levels for one month at home using the Faces, Legs, Arms, Cry, and Consolability (FLACC) scale for patients aged <4 years and the Ospedale Pediatrico Bambino Gesù (OPBG) tool for patients aged 4 to 21 years. At study conclusion, parents were asked to complete a survey about their satisfaction with the app and to rate their child's health in general, pain intensity, and frequency in the past 4 weeks. Of the 124 participants using the app, 94 (75.8%) reported pain (≥1) at least once during the 1 month. Of these, 53 (56.4%) at most reported mild pain, 33 (35.1%) moderate pain, and eight (8.5%) severe pain. The abdomen was identified as the most frequent (56.3%) pain site by patients aged 4 to 21 years. The child's maximum pain intensity during the study period was negatively correlated with the parent's report of the child's health during the past month (r = -.29, p < .01). Most of the participants were satisfied with the app and the information received about app usage. In conclusion, the app facilitated pain assessment and tracking in patients receiving hospital-at-home care.

中文翻译:

家庭疼痛的电子评估和追踪:一项针对儿童血液肿瘤或实体瘤的前瞻性研究

本研究旨在评估疼痛的强度和特征,这些疼痛的强度和特征是由癌症儿童或其父母使用移动设备应用程序在家中评估的,用于为期 1 个月的研究后登记。这项观察性前瞻性研究的参与者是意大利一家学术医院血液科/肿瘤科的门诊患者,年龄在 0 至 21 岁之间,接受住院治疗。要求患者或其父母在家中使用面部、腿部、手臂、哭泣和安慰性 (FLACC) 量表(适用于 4 岁以下的患者)和 Ospedale Pediatrico Bambino Gesù (OPBG) 工具(适用于老年患者)评估一个月的疼​​痛水平4 至 21 岁。在研究结束时,父母被要求完成一项关于他们对应用程序满意度的调查,并对孩子的总体健康状况、疼痛强度、以及过去 4 周的频率。在使用该应用程序的 124 名参与者中,94 名(75.8%)在 1 个月内至少报告了一次疼痛(≥1)。其中,最多 53 人 (56.4%) 报告轻度疼痛,33 人 (35.1%) 中度疼痛,8 人 (8.5%) 重度疼痛。腹部被 4 至 21 岁的患者确定为最常见 (56.3%) 的疼痛部位。研究期间孩子的最大疼痛强度与父母在过去一个月内报告孩子的健康状况呈负相关(r = -.29,p < .01)。大多数参与者对应用程序和收到的有关应用程序使用情况的信息感到满意。总之,该应用程序促进了接受住院治疗的患者的疼痛评估和跟踪。8%) 在 1 个月内至少报告了一次疼痛 (≥1)。其中,最多 53 人 (56.4%) 报告轻度疼痛,33 人 (35.1%) 中度疼痛,8 人 (8.5%) 重度疼痛。腹部被 4 至 21 岁的患者确定为最常见 (56.3%) 的疼痛部位。研究期间孩子的最大疼痛强度与父母在过去一个月内报告孩子的健康状况呈负相关(r = -.29,p < .01)。大多数参与者对应用程序和收到的有关应用程序使用情况的信息感到满意。总之,该应用程序促进了接受住院治疗的患者的疼痛评估和跟踪。8%) 在 1 个月内至少报告了一次疼痛 (≥1)。其中,最多 53 人(56.4%)报告轻度疼痛,33 人(35.1%)中度疼痛,8 人(8.5%)重度疼痛。腹部被 4 至 21 岁的患者确定为最常见 (56.3%) 的疼痛部位。研究期间孩子的最大疼痛强度与父母在过去一个月内报告孩子的健康状况呈负相关(r = -.29,p < .01)。大多数参与者对应用程序和收到的有关应用程序使用情况的信息感到满意。总之,该应用程序促进了接受住院治疗的患者的疼痛评估和跟踪。3%) 4 至 21 岁患者的疼痛部位。研究期间孩子的最大疼痛强度与父母在过去一个月内报告孩子的健康状况呈负相关(r = -.29,p < .01)。大多数参与者对应用程序和收到的有关应用程序使用情况的信息感到满意。总之,该应用程序促进了接受住院治疗的患者的疼痛评估和跟踪。3%) 4 至 21 岁患者的疼痛部位。研究期间孩子的最大疼痛强度与父母在过去一个月内报告孩子的健康状况呈负相关(r = -.29,p < .01)。大多数参与者对应用程序和收到的有关应用程序使用情况的信息感到满意。总之,该应用程序促进了接受住院治疗的患者的疼痛评估和跟踪。
更新日期:2020-12-03
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