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The European Academy of Neurology COVID-19 registry (ENERGY): an international instrument for surveillance of neurological complications in patients with COVID-19
European Journal of Neurology ( IF 5.1 ) Pub Date : 2020-11-21 , DOI: 10.1111/ene.14652
Ettore Beghi 1 , Raimund Helbok 2 , Michael Crean 3 , Sherry Hsiang-Yi Chou 4 , Molly McNett 5 , Elena Moro 6 , Claudio Bassetti 7 ,
Affiliation  

The COVID-19 pandemic is a global public health issue. Neurological complications have been reported in up to one-third of affected cases, but their distribution varies significantly in terms of prevalence, incidence and phenotypical characteristics. Variability can be mostly explained by the differing sources of cases (hospital vs. community-based), the accuracy of the diagnostic approach and the interpretation of the patients’ complaints. Moreover, after recovering, patients can still experience neurological symptoms. To obtain a more precise picture of the neurological manifestations and outcome of the COVID-19 infection, an international registry (ENERGY) has been created by the European Academy of Neurology in collaboration with European national neurological societies and the Neurocritical Care Society and Research Network. ENERGY can be implemented as a stand-alone instrument for patients with suspected or confirmed COVID-19 and neurological findings or as an addendum to an existing registry not targeting neurological symptoms. Data are also collected to study the impact of neurological symptoms and neurological complications on outcomes. The variables included in the registry have been selected in the interests of most countries, to favour pooling with data from other sources and to facilitate data collection even in resource-poor countries. Included are adults with suspected or confirmed COVID-19 infection, ascertained through neurological consultation, and providing informed consent. Key demographic and clinical findings are collected at registration. Patients are followed up to 12 months in search of incident neurological manifestations. As of 19 August, 254 centres from 69 countries and four continents have made requests to join the study.

中文翻译:

欧洲神经病学学会 COVID-19 登记处 (ENERGY):一种用于监测 COVID-19 患者神经系统并发症的国际工具

COVID-19 大流行是一个全球公共卫生问题。据报道,多达三分之一的受影响病例出现了神经系统并发症,但其分布在患病率、发病率和表型特征方面差异很大。变异性主要可以通过病例来源的不同(医院与社区)、诊断方法的准确性和患者投诉的解释来解释。而且,康复后,患者仍会出现神经系统症状。为了更准确地了解 COVID-19 感染的神经系统表现和结果,欧洲神经病学会与欧洲国家神经病学学会和神经重症监护学会和研究网络合作创建了一个国际登记处 (ENERGY)。神经学发现或作为现有登记册的附录,不针对神经症状。还收集数据以研究神经系统症状和神经系统并发症对结果的影响。登记册中包含的变量的选择符合大多数国家的利益,有利于汇集来自其他来源的数据,并促进数据收集,即使在资源贫乏的国家也是如此。包括疑似或确诊 COVID-19 感染、通过神经科会诊确定并提供知情同意的成年人。在注册时收集关键的人口统计学和临床​​发现。对患者进行长达 12 个月的随访,以寻找新发的神经系统表现。截至 8 月 19 日,来自 4 大洲 69 个国家的 254 个中心已请求加入该研究。
更新日期:2020-11-21
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