Background:People with Parkinson’s disease suffer from a range of various symptoms. Altered movement patterns frequently represent the prevailing symptom experience and influence the everyday life of the affected persons. Objective:This qualitative study explores how persons with Parkinson‘s disease experience everyday life with a complex symptom profile and how they manage the consequential challenges in their daily life, as well as the motivation and consequences of these coping behaviours. Methods:Thirty-four patients with Parkinson’s disease were interviewed as an integrated part of the method Video-based Narrative. The interviews were analysed by means of qualitative content analysis according to Graneheim & Lundman. Results:The analysis identified six predominant coping types with different behavioural traits: The convincing behaviour, The economizing behaviour, The encapsulating behaviour, The evasive behaviour, The adaptable behaviour, and The dynamic behaviour. The strategies embedded in each of the six types are diverse, but all participants seek to maintain their integrity in different ways leading to the main motivation “To stay the same person”. Conclusion:Healthcare professionals should be aware of the patients‘ various coping behaviour in order to offer a person-centred approach. Psychoeducational interventions to promote coping skills may be essential in incorporating disease-related changes in the conduct of everyday life with Parkinson’s disease to maintain integrity.

中文翻译：

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识别帕金森病患者的主要类型：基于视频的叙述的归纳内容分析

背景：帕金森病患者有一系列不同的症状。改变的运动模式经常代表普遍的症状体验并影响受影响人的日常生活。目标：这项定性研究探讨了帕金森病患者如何体验具有复杂症状特征的日常生活，以及他们如何应对日常生活中随之而来的挑战，以及这些应对行为的动机和后果。方法：作为基于视频叙事方法的一个组成部分，对 34 名帕金森病患者进行了访谈。根据 Graneheim & Lundman，通过定性内容分析对访谈进行了分析。结果：分析确定了具有不同行为特征的六种主要应对类型：令人信服的行为、节约行为、封装行为、回避行为、适应性行为和动态行为。嵌入在六种类型中的每一种的策略各不相同，但所有参与者都试图以不同的方式保持自己的完整性，从而导致“保持原样”的主要动机。结论：医护人员应了解患者的各种应对行为，以提供以人为本的方法。促进应对技能的心理教育干预可能对于将与疾病相关的变化纳入帕金森病日常生活行为以保持完整性至关重要。但所有参与者都试图以不同的方式保持他们的正直，从而导致“保持同一个人”的主要动机。结论：医护人员应了解患者的各种应对行为，以提供以人为本的方法。促进应对技能的心理教育干预可能对于将与疾病相关的变化纳入帕金森病日常生活行为以保持完整性至关重要。但所有参与者都试图以不同的方式保持他们的正直，从而导致“保持同一个人”的主要动机。结论：医护人员应了解患者的各种应对行为，以提供以人为本的方法。促进应对技能的心理教育干预可能对于将与疾病相关的变化纳入帕金森病日常生活行为以保持完整性至关重要。