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The implications of public awareness and knowledge of aphasia around the world
Annals of Indian Academy of Neurology ( IF 1.7 ) Pub Date : 2020-09-01 , DOI: 10.4103/aian.aian_460_20
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Background: The services provided and the financial support for research into a health condition is influenced by public awareness of a health condition. There has been a wide range of surveys of the public's and health professional's awareness of aphasia throughout the world to gauge levels of awareness. Findings confirm that awareness of aphasia is universally lower than comparable conditions. Objective: To provide a review of international public and health workers' awareness and knowledge of aphasia. Materials and Methods: A narrative review examining known telephone, internet and face-to-face surveys of aphasia to determine international levels of awareness, knowledge and attempts to raise the awareness of aphasia. Results: Awareness is internationally low and actual knowledge is even lower: 1%-66% for awareness and 5%-17% for actual knowledge. While higher than the public, levels of awareness and knowledge are also low among health professionals. A range of demographic variables, like age, sex and socio-economic status, are significantly associated with levels of awareness. People who have some awareness or knowledge of aphasia have gained it from the media or personal and professional contact with aphasia. Discussion and Conclusion: Awareness and knowledge of aphasia are low when compared to other communication disorders and comparable neurological conditions, for example, Parkinson's disease. The implications of results for service provision, research funding and awareness-raising programmes are reviewed and further suggestions for awareness-raising are discussed.


中文翻译:

世界各地公众对失语症的认识和知识的影响


背景:为健康状况研究提供的服务和财政支持受到公众对健康状况的认识的影响。已经对全世界公众和卫生专业人员对失语症的认识进行了广泛的调查,以衡量认识水平。研究结果证实,对失语症的认识普遍低于可比条件。目的:回顾国际公共和卫生工作者对失语症的认识和知识。材料和方法:一项叙述性审查,检查已知的失语症电话、互联网和面对面调查,以确定国际水平的认识、知识和提高对失语症认识的尝试。结果:国际上的认知度较低,实际知识甚至更低:认知度为 1%-66%,实际知识为 5%-17%。虽然高于公众,但卫生专业人员的意识和知识水平也较低。一系列人口统计变量,如年龄、性别和社会经济地位,与意识水平显着相关。对失语症有一定认识或知识的人是从媒体或与失语症的个人和专业接触中获得的。讨论与结论:与其他交流障碍和类似的神经系统疾病(例如帕金森氏病)相比,对失语症的认识和知识较低。审查结果对服务提供、研究资金和提高认识计划的影响,并讨论了提高认识的进一步建议。
更新日期:2020-10-06
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