Abstract Family caregivers of people with dementia often must make crucial medical decisions for them that may increase the burden of care experienced. Although undertaking Advance Care Planning (ACP) might reduce their decision-making burden, completion rates remain very low. The present study aimed to explore the common beliefs of family caregivers of people with dementia about undertaking ACP for themselves. A qualitative study was conducted, using a semi-structured questionnaire based on the Theory of Planned Behavior. Face-to-face interviews were conducted with a convenience sample of 20 family caregivers of people with dementia in Israel. The behavioral beliefs expressed by the participants referred to the dual benefits of ACP, for the person who will not be able to make medical decisions at the end of life and for themselves. Participants mentioned that family members and friends were the main persons with whom they would consult in making decisions regarding ACP. Personal characteristics and instrumental factors were mentioned as enablers and barriers to undertaking ACP. Findings from the study provide an important basis for expanding research and for developing interventions that can encourage undertaking ACP.

中文翻译：

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以色列痴呆症患者家庭看护人对提前护理计划的信念

摘要 痴呆症患者的家庭护理人员通常必须为他们做出重要的医疗决定，这可能会增加所经历的护理负担。尽管进行预先护理计划 (ACP) 可能会减轻他们的决策负担，但完成率仍然很低。本研究旨在探讨痴呆症患者的家庭照顾者对自己进行 ACP 的共同信念。使用基于计划行为理论的半结构化问卷进行了定性研究。对以色列痴呆症患者的 20 名家庭照顾者的便利样本进行了面对面访谈。参与者表达的行为信念提到了 ACP 的双重好处，对于在临终时无法做出医疗决定的人和他们自己。参与者提到，在做出有关 ACP 的决定时，他们会咨询的主要对象是家人和朋友。个人特征和工具因素被认为是实施 ACP 的推动因素和障碍。该研究的结果为扩大研究和制定可以鼓励进行 ACP 的干预措施提供了重要基础。