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Exploring Participants' Experiences of a Web-Based Program for Bulimia and Binge Eating Disorder: Qualitative Study.
Journal of Medical Internet Research ( IF 7.4 ) Pub Date : 2020-09-23 , DOI: 10.2196/17880
See Heng Yim 1 , Emma Bailey 1 , Gemma Gordon 1 , Nina Grant 2 , Peter Musiat 1 , Ulrike Schmidt 1, 2
Affiliation  

Background: Guided cognitive behavioral self-help is a recommended first-line treatment for eating disorders (EDs) such as bulimia nervosa (BN) or binge eating disorder (BED). Online versions of such self-help programs are increasingly being studied in randomized controlled trials (RCTs), with some evidence that they can reduce ED symptoms, although intervention dropout is variable across interventions. However, in-depth research into participants’ experiences and views on the acceptability of web-based interventions is limited. Objective: This is a qualitative process study of participants’ experiences of everyBody Plus, a web-based cognitive behavioral intervention, integrated into a large RCT to aid the interpretation of the main trial’s results. To our knowledge, this is the first such study in digital intervention for EDs research to include real-time feedback into the qualitative analysis. This study aims to build upon the emerging literature by qualitatively exploring participants’ experiences of a web-based intervention for BN and BED. Methods: Participants were those who took part in the UK arm of a larger RCT investigating the efficacy of the everyBody Plus intervention. Reflexive thematic analysis was completed on 2 sources of data from the online platform: real-time feedback quotes provided at the end of completing a module on the platform (N=104) and semistructured telephone interview transcripts (n=12). Results: Four main themes were identified. The first theme identified positive and negative user experiences, with a desire for a more customized and personalized intervention. Another theme positively reflected on how flexible and easy the intervention was to embed into daily life, compared with the silo of face-to-face therapy. The third theme identified how the intervention had a holistic impact cognitively, emotionally, interpersonally, and behaviorally. The final theme was related to how the intervention was not a one size fits all and how the perceived usefulness and relevance were often dependent on participants’ demographic and clinical characteristics. Conclusions: Overall, participants reported positive experiences with the use of the everyBody Plus web-based intervention, including flexibility of use and the potential to holistically impact people’s lives. The participants also provided valuable suggestions for how similar future web-based interventions could be improved and, in the context of EDs, how programs can be designed to be more inclusive of people by encompassing different demographic and clinical characteristics.

This is the abstract only. Read the full article on the JMIR site. JMIR is the leading open access journal for eHealth and healthcare in the Internet age.


中文翻译:

探索参与者对基于网络的贪食症和暴食症的经验:定性研究。

背景:指导性认知行为自助是一种推荐的针对饮食失调(ED)的一线治疗方法,例如神经性贪食症(BN)或暴食症(BED)。此类自助程序的在线版本正越来越多地在随机对照试验(RCT)中进行研究,尽管有证据表明干预措施的退出因干预措施而异,但它们可以减轻ED症状。但是,对于参与者对基于Web的干预措施的可接受性的经验和观点的深入研究是有限的。目的:这是一项定性的过程研究,涉及参与者对基于网络的认知行为干预EveryBody Plus的体验,该研究已集成到大型RCT中以帮助解释主要试验的结果。据我们所知,这是针对EDs研究的数字干预中的第一项此类研究,它将实时反馈纳入定性分析。本研究旨在通过定性探索参与者对基于网络的BN和BED干预的经验,以建立在新兴文献的基础上。方法:参与者是参加大型RCT英国分部的研究者,他们研究了EveryBody Plus干预措施的有效性。在网上平台的两个数据源上完成了反思性主题分析:在平台上完成模块后提供的实时反馈报价(N = 104)和半结构化电话采访记录(n = 12)。结果:确定了四个主要主题。第一个主题确定了积极和消极的用户体验,以及对个性化和个性化干预的渴望。与面对面治疗的筒仓相比,另一个主题积极地反映了干预在日常生活中的灵活和轻松程度。第三个主题确定了干预如何在认知,情感,人际和行为上产生整体影响。最后一个主题与干预措施如何不适合所有人,以及感知的有用性和相关性通常取决于参与者的人口统计学和临床​​特征有关。结论:总体而言,参与者报告了使用基于Web的everyBody Plus干预的积极经验,包括使用的灵活性以及对人们生活产生整体影响的潜力。参与者还提出了宝贵的建议,说明如何改进未来类似的基于网络的干预措施,以及在急诊科的背景下,

这仅仅是抽象的。阅读JMIR网站上的全文。JMIR是互联网时代电子健康和医疗保健领域领先的开放获取期刊。
更新日期:2020-09-23
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