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Contestable kinship: user experience and engagement on DTC genetic testing sites
New Genetics and Society ( IF 1.8 ) Pub Date : 2019-10-02 , DOI: 10.1080/14636778.2019.1677148
Katherine Gregory 1
Affiliation  

Direct-to-consumer genetic testing products and their participatory social media outlets provide users with new ways to understand ancestral identity, build community around shared results, and conceptualize the role of genetic determinism in their lives. In this article, I explore of role of user-generated information constructed with results from direct-to-consumer genetic scanning services such as 23andme, GEDMatch, AncestryDNA, MyHeritage. In particular, this paper considers how social capital is accumulated and disseminated utilizing these participatory tools in the communication practices of users. Through the sharing of genealogical knowledge, historical expertise, communication technology skills, access to genealogical services, selective behaviors such as cooperation, trust building, and a reliable presence on these social networking sites are examined. Thus this article aims to examine consumer contact practices and information sharing of social capital in the form of familial origin narratives, genetic ancestry estimations, and how this communication shapes user interpretation of genetic results.

中文翻译:

有争议的亲属关系:DTC 基因检测网站的用户体验和参与度

直接面向消费者的基因检测产品及其参与式社交媒体渠道为用户提供了新的方式来了解祖先身份、围绕共享结果建立社区,并概念化基因决定论在他们生活中的作用。在本文中,我探讨了由直接面向消费者的基因扫描服务(例如 23andme、GEDMatch、AncestryDNA、MyHeritage)的结果构建的用户生成信息的作用。特别地,本文考虑了如何在用户的交流实践中利用这些参与工具来积累和传播社会资本。通过共享宗谱知识、历史专业知识、通信技术技能、获得宗谱服务、合作、建立信任等选择性行为,并检查这些社交网站上的可靠存在。因此,本文旨在以家族起源叙述、遗传祖先估计的形式研究消费者接触实践和社会资本的信息共享,以及这种交流如何影响用户对遗传结果的解释。
更新日期:2019-10-02
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