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Life Experiences of Mothers of Children with an Intellectual Disability: A Qualitative Study
Journal of Mental Health Research in Intellectual Disabilities ( IF 2.000 ) Pub Date : 2018-10-08 , DOI: 10.1080/19315864.2018.1518502
Merve Inan Budak 1 , Leyla Küçük 2 , Hatice Yaprak Civelek 3
Affiliation  

Introduction: Mothers of intellectually disabled children face several psychological problems. Qualitative studies use a process that can reveal truthful perceptions and help mothers express their emotions about their unique and personal experiences. Method: This study used a qualitative research method design with a hermeneutic approach to examine the life experiences of mothers of children with intellectual disabilities in light of their caregiving experiences. Results: A phenomenological, hermeneutical analysis with an inductive approach was used. The categories of interest were determined to be “impact,” “care management,” “stigma,” “uncertainty,” “relations,” and “search for meaning.” Conclusions: Not all mothers perceive having an intellectually disabled child negatively. Some mothers may not experience any problems providing care to their children. Almost all mothers, however, have concerns for the future and experience significant changes in their family and social relationships.



中文翻译:

智障儿童母亲的生活经历:定性研究

简介:智障儿童的母亲面临着一些心理问题。定性研究使用的过程可以揭示真实的看法,并帮助母亲表达其对自己独特和个人经历的情感。方法:本研究采用定性研究方法设计,并采用诠释学方法,根据智障儿童母亲的照料经历,考察他们的生活经历。结果:使用了归纳法的现象学,诠释学分析。感兴趣的类别被确定为“影响”,“护理管理”,“污名”,“不确定性”,“关系”和“寻找意义”。结论:并非所有母亲都对生育智障的孩子产生负面影响。有些母亲在照顾孩子方面可能没有任何问题。但是,几乎所有的母亲都对未来感到担忧,并且在家庭和社会关系中经历了重大变化。

更新日期:2018-10-08
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