Introduction: The Intellectual and Developmental Disability Mental Health (IDD-MH) Research Partnership was created to learn about the experiences and needs of young adults with IDD-MH while accessing and using mental health services. Our national partnership consists of six young adults, five professionals, researchers at Boston University, and representatives from Self Advocates Becoming Empowered and The Arc of the United States. Our partnership worked together virtually for one year.

Methods: We designed and conducted a web survey with young adults with IDD-MH ages 18–30 living in the United States (n = 76). We also completed four national storytelling sessions (1 in person, 3 virtual) that included young adults with IDD-MH (n = 10) and parents of young adults with IDD-MH (n = 6).

Results: We identified eight priority topic areas for young adults with IDD-MH: Transition to Adulthood, Insurance & Financial Resources, Professionals’ Competence, Understanding the Experiences of People who Communicate Differently, Hospitalization, Medication, Alternatives to Medication, and Social Supports.

Conclusions: Using what we learned, we generated recommendations to advance research and practice in areas important to young adults with IDD-MH. These recommendations highlight the importance of community-based options, choice, autonomy, and control for young adults with IDD-MH.

简介：建立了智力和发育障碍心理健康（IDD-MH）研究合作伙伴关系，目的是在访问和使用心理健康服务时了解IDD-MH的年轻人的经验和需求。我们的国家合作伙伴包括六名年轻人，五名专业人员，波士顿大学的研究人员以及“自我支持者”组织和“美国弧”组织的代表。我们的合作关系实际上已经合作了一年。

方法：我们设计并进行了一项网络调查，调查了居住在美国（n = 76）的18至30岁IDD-MH的年轻人。我们还完成了四次全国讲故事会议（亲自参加1次，虚拟演讲3次），其中包括IDD-MH的年轻成年人（n = 10）和IDD-MH的年轻成年人的父母（n = 6）。

结果：我们为IDD-MH的年轻人确定了八个优先主题领域：向成年过渡，保险和财务资源，专业人员的能力，了解以不同方式交流的人的经历，住院，药物治疗，药物替代和社会支持。

结论：根据所学知识，我们提出了一些建议，以促进对IDD-MH年轻人重要的领域的研究和实践。这些建议凸显了针对IDD-MH年轻人的基于社区的选择，选择，自治和控制的重要性。