Thinking "ethical" when designing an international, cross-disciplinary biomedical research consortium.,The EMBO Journal

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Thinking "ethical" when designing an international, cross-disciplinary biomedical research consortium.
The EMBO Journal ( IF 11.4 ) Pub Date : 2020-09-07 , DOI: 10.15252/embj.2020105725
Maria-Elena Torres-Padilla _{1,

2} , Annelien L Bredenoord ₃ , Karin R Jongsma ₃ , Astrid Lunkes _{1,

4} , Luca Marelli _{5,

6,

7} , Ines Pinheiro ₈ , Giuseppe Testa _{6,

9,

10}

Affiliation

Institute of Epigenetics and Stem Cells (IES), Helmholtz Zentrum München, München, Germany.
Faculty of Biology, Ludwig-Maximilians Universität, München, Germany.
Department of Medical Humanities, Julius Center, University Medical Center Utrecht, Utrecht, The Netherlands.
Institute of Functional Epigenetics, Helmholtz Zentrüm München, München, Germany.
Life Sciences & Society Lab, Centre for Sociological Research, KU Leuven, Leuven, Belgium.
Department of Experimental Oncology, IEO, European Institute of Oncology, IRCCS, Milan, Italy.
Department of Medical Biotechnologies and Translational Medicine, University of Milan, Milan, Italy.
Nuclear Dynamics Unit, Institut Curie, PSL Research University, Paris, France.
Department of Oncology and Hemato-oncology, Università degli Studi di Milano, Milan, Italy.
Human Technopole, Milan, Italy.

This commentary outlines challenges with identifying and implementing ethical, legal and societal considerations when initiating large-scale scientific programs and suggests best practices to ensure responsible research.

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