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Understanding the Obstacles to Uptake of Intervention Programmes and Services for Persons with Dementia.
Current Alzheimer Research ( IF 2.1 ) Pub Date : 2020-05-01 , DOI: 10.2174/1567205017666200807192634
Ha N H Lien 1 , Emily J Koh 1 , Philip L K Yap 1
Affiliation  

Background: Utilisation of intervention programmes and services for Persons with Dementia (PWD) has been generally modest despite the growing numbers. One reason has been the lack of knowledge about dementia and information on such services.

Objective: We sought to close this gap by providing caregivers with an information session about dementia and the importance and availability of related services. We explored the uptake of intervention programmes and services and reasons for non-uptake thereafter.

Methods: Two hundred and seventy-five PWD and caregiver dyads attended the Dyad Education and Empowerment Programme (DEEP). At the DEEP, while caregivers underwent an information session, PWD were assessed by a multidisciplinary team on their need and suitability for programmes and services such as daycare, cognitive engagement programmes and physical rehabilitation. The dyads then received individualized recommendations on the appropriate services, if any. Follow-up through medical records review and phone calls was conducted one month after DEEP to ascertain if the dyads had acted upon the recommendations and if not, what difficulties they encountered.

Results: One hundred and eleven PWD received recommendations, of which 40 (36.0%) agreed and enrolled in the services while 71 (64%) declined. Thematic analysis of the reasons for non-uptake revealed 3 themes: PWD-related factors (e.g., refusal, functional improvement or decline), caregiverrelated factors (adequacy of care at home, other care arrangements), and service-related factors (e.g., cost, timing).

Conclusion: Despite adequate information, there are other reasons for non-uptake of dementia- related services, some of which should be addressed to improve service updates and to provide better care for PWD.



中文翻译:

了解为痴呆症患者提供干预计划和服务的障碍。

背景:尽管痴呆症患者 (PWD) 的干预计划和服务的使用人数不断增加,但其使用率总体上并不高。原因之一是缺乏有关痴呆症的知识和有关此类服务的信息。

目标:我们试图通过为护理人员提供有关痴呆症以及相关服务的重要性和可用性的信息会议来缩小这一差距。我们探讨了干预计划和服务的采用情况以及此后未采用的原因。

方法:275 名残障人士和看护者二人参加了二人教育和赋权计划 (DEEP)。在 DEEP 中,当护理人员接受信息会议时,多学科团队对残疾人进行评估,评估他们对日托、认知参与计划和身体康复等计划和服务的需求和适用性。然后,二人组收到有关适当服务的个性化建议(如果有的话)。在 DEEP 后一个月通过医疗记录审查和电话进行跟进,以确定二人是否按照建议采取了行动,如果没有,他们遇到了哪些困难。

结果:111 名残疾人收到了建议,其中 40 名 (36.0%) 同意并参加了服务,而 71 名 (64%) 拒绝了。对未接受原因的专题分析揭示了 3 个主题:PWD 相关因素(例如,拒绝、功能改善或下降)、照料者相关因素(在家中的照料充分、其他照料安排)和服务相关因素(例如,成本、时间)。

结论:尽管信息充足,但不接受痴呆相关服务还有其他原因,其中一些应该解决以改进服务更新并为残疾人提供更好的护理。

更新日期:2020-05-01
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