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Parents' multi-layered expectations when requesting an Autism Spectrum Disorder assessment of their young child: an in-depth interview study.
BMC Psychiatry ( IF 4.4 ) Pub Date : 2020-09-10 , DOI: 10.1186/s12888-020-02806-7
Delphine Jacobs 1 , Jean Steyaert 2 , Kris Dierickx 1 , Kristien Hens 3
Affiliation  

Parents are valued stakeholders in research, clinical practice and policy development concerning autism spectrum disorder (ASD). However, little is known about what drives and moves parents besides their obvious worries and help request when they ask for a diagnostic ASD assessment of their child. Seventeen Flemish parents of 11 young children participated in a longitudinal study consisting of three in-depth interviews before and after their child’s diagnostic ASD assessment. Data were analysed in Nvivo 11 according to the procedures of Interpretative Phenomenological Analysis. In this paper we report the results of the first series of interviews which were conducted after parents had asked for an ASD assessment of their young child, and before this assessment started. The pre-assessment experiences of the parents were dominated by the anticipation of various implications of an ASD diagnosis, comprising both positive and negative expectations. The theme of positive expectations consisted of two equally prominent subthemes: treatment-related implications but also expectations pertaining to their psychological and relational experiences. This study suggests important issues for clinicians to bear in mind during a consultation with parents who request an ASD assessment of their young child. We argue that attending to and communicating about parents’ expectations prior to their child’s ASD assessment may help clinicians to better understand parents’ requests for help, and to address their needs more effectively.

中文翻译:

父母要求对年幼的孩子进行自闭症谱系障碍评估时的多层期望:一项深入的访谈研究。

在自闭症谱系障碍(ASD)的研究,临床实践和政策制定中,父母是重要的利益相关者。然而,除了父母明显的担忧和帮助要求他们对孩子进行诊断性ASD评估时所提出的帮助要求外,鲜为人知的是什么驱动和移动父母。来自11个孩子的17名佛兰德父母参加了一项纵向研究,该研究包括在对孩子进行ASD诊断评估之前和之后的三个深度访谈。根据解释现象学分析的程序,在Nvivo 11中对数据进行了分析。在本文中,我们报告了第一批访谈的结果,这些访谈是在父母要求对幼儿进行ASD评估之后以及评估开始之前进行的。父母的预评估经历主要是对ASD诊断的各种影响的预期,包括积极和消极的期望。积极期望的主题包括两个同样突出的子主题:与治疗有关的含义,以及与他们的心理和关系经历有关的期望。这项研究提出了临床医生在与父母进行咨询时需要牢记的重要问题,这些父母要求对幼儿进行ASD评估。我们认为,在对孩子进行ASD评估之前关注并传达父母的期望可能有助于临床医生更好地了解父母的帮助请求,并更有效地满足他们的需求。积极期望的主题包括两个同样突出的子主题:与治疗有关的含义,以及与他们的心理和关系经历有关的期望。这项研究提出了临床医生在与父母进行咨询时需要牢记的重要问题,这些父母要求对幼儿进行ASD评估。我们认为,在对孩子进行ASD评估之前关注并传达父母的期望可能有助于临床医生更好地了解父母的帮助请求,并更有效地满足他们的需求。积极期望的主题包括两个同样突出的子主题:与治疗有关的含义,以及与他们的心理和关系经历有关的期望。这项研究提出了临床医生在与父母进行咨询时需要牢记的重要问题,这些父母要求对幼儿进行ASD评估。我们认为,在对孩子进行ASD评估之前关注并传达父母的期望可能有助于临床医生更好地了解父母的帮助请求,并更有效地满足他们的需求。这项研究提出了临床医生在与父母进行咨询时需要牢记的重要问题,这些父母要求对幼儿进行ASD评估。我们认为,在对孩子进行ASD评估之前关注并传达父母的期望可能有助于临床医生更好地了解父母的帮助请求,并更有效地满足他们的需求。这项研究提出了临床医生在与父母进行咨询时需要牢记的重要问题,这些父母要求对幼儿进行ASD评估。我们认为,在对孩子进行ASD评估之前关注并传达父母的期望可能有助于临床医生更好地了解父母的帮助请求,并更有效地满足他们的需求。
更新日期:2020-09-10
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