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Consumer health information needs: A systematic review of instrument development
Information Processing & Management ( IF 8.6 ) Pub Date : 2020-09-09 , DOI: 10.1016/j.ipm.2020.102376
Jianxing Chi , Wenjing Pian , Shuai Zhang

Identifying health information needs is an important part of user-centered health information behavior research. Qualitative information behavior studies yield deep insights but have limited generalizability. Quantitative studies using questionnaire instruments offer better generalizability, but only if the instruments are properly developed and validated. A systematic review of the questionnaire instruments used in quantitative studies of health information needs was carried out, focusing on whether the instruments were appropriately developed and validated (including content validity, internal consistency, structural validity, construct validity, and floor and ceiling effects). The questionnaire instruments were grouped into two types: those that assess consumer health information needs, and those that assess patient needs that impact patient quality of life (including health information needs). One hundred and seventeen validation studies for these instruments were identified in the literature and evaluated for their methodological quality and psychometric properties. It was found that, overall, the two groups of questionnaire instruments were not well developed: only structural validity, internal consistency tests and content validity analysis were performed in about 50 percent of them; other types of validations were missing in most of them. Even for the instruments with some validation tests performed, they were usually not designed based on relevant theory to support content validity, lacked specifications for handling missing data; and had inappropriate factor analysis in the structural validity test. Instruments used for assessing patient needs were found to perform better in testing construct validity and evaluating floor and ceiling effects. Practical recommendations include the use of information needs theories and the results of qualitative studies to inform instrument development, as well as the advice on conducting more rigorous validations.



中文翻译:

消费者健康信息需求:对仪器开发的系统评价

识别健康信息需求是以用户为中心的健康信息行为研究的重要组成部分。定性的信息行为研究产生了深刻的见解,但普遍性有限。使用问卷工具进行定量研究可以提供更好的通用性,但前提是必须正确开发和验证工具。对卫生信息需求定量研究中使用的问卷工具进行了系统的审查,重点是这些工具是否得到适当开发和验证(包括内容有效性,内部一致性,结构有效性,结构有效性以及底限和上限效应)。问卷调查工具分为两类:评估消费者健康信息需求的工具,以及那些评估会影响患者生活质量的患者需求(包括健康信息需求)的需求。在文献中对这些仪器进行了117次验证研究,并对其方法学质量和心理计量学特性进行了评估。结果发现,总体而言,两组问卷调查工具的开发都不完善:仅在其中约50%的样本中进行了结构有效性,内部一致性测试和内容有效性分析。大多数中都缺少其他类型的验证。即使对于进行了某些验证测试的仪器,它们通常也不是根据相关理论来设计的,以支持内容的有效性,缺乏处理丢失数据的规范。并且在结构效度检验中进行了不适当的因素分析。发现用于评估患者需求的仪器在测试结构有效性和评估地板和天花板效果方面表现更好。实用的建议包括使用信息需求理论和定性研究的结果为仪器开发提供信息,以及有关进行更严格验证的建议。

更新日期:2020-09-10
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