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A tool for measuring burden in activities and participation of clients with acquired brain injury: the FINAH-instrument.
Brain Injury ( IF 1.9 ) Pub Date : 2020-08-05 , DOI: 10.1080/02699052.2020.1802658
Frederik Houben 1 , Rudi Ghysels 1 , Danny Mennen 2 , Roel Bosmans 3 , Erik Nuyts 1, 4 , Annemie Spooren 1, 5
Affiliation  

Primary objective: The objective of this study was to design an instrument to screen for burden in the daily life of both the client with acquired brain injury (ABI) and their nonprofessional caregiver.

Research Design: Exploratory research

Methods and Procedures: Based on a survey amongst stakeholder organizations, the FINAH-instrument is designed as a digital self-assessment questionnaire, based on ICF-framework. A test survey of the FINAH instrument is conducted on both clients, nonprofessional caregivers and healthcare professionals.

Main Outcomes and Results: The relative burden per item for clients and nonprofessional caregivers is most prominent in the domains of fatigue, cognitive and emotional consequences, self-care and mobility. The estimation of burden for clients and nonprofessional caregiver by healthcare professionals showed an overall 65% correct estimation by the healthcare professional. 19% of the items showed underestimation of burden, while 16% showed overestimation.

Conclusions: These results show that FINAH can ameliorate the estimation of the health care professional on the self-assessed burden of clients and nonprofessional caregivers, thus substantiating a more client-centred approach.



中文翻译:

FINAH仪器是一种衡量获得性脑损伤的客户的活动和参与负担的工具。

主要目标:这项研究的目的是设计一种工具,以筛查患有后天性脑损伤(ABI)的患者及其非专业护理人员的日常生活负担。

研究设计:探索性研究

方法和程序:基于利益相关者组织的调查,FINAH仪器被设计为基于ICF框架的数字自我评估问卷。对客户,非专业护理人员和医疗保健专业人员进行了FINAH仪器的测试调查。

主要结果和结果:在疲劳,认知和情感后果,自我护理和行动能力等领域,服务对象和非专业护理人员的相对负担最为突出。医护专业人员对客户和非专业护理人员的负担估计显示,医护专业人员总体上正确估计为65%。19%的项目显示负担低估,而16%的项目显示负担过高。

结论:这些结果表明,FINAH可以改善医疗保健专业人员对服务对象和非专业护理人员的自我评估负担的估计,从而证实以服务对象为中心的方法。

更新日期:2020-08-22
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