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The International Spinal Cord Injury Survey: The Way Forward
Archives of Physical Medicine and Rehabilitation ( IF 4.3 ) Pub Date : 2020-12-01 , DOI: 10.1016/j.apmr.2020.06.011
Jerome Bickenbach 1 , Linamara Batistella 2 , Christoph Gutenbrunner 3 , James Middleton 4 , Marcel W Post 5 , , Gerold Stucki 1
Affiliation  

As a community survey of people living with spinal cord injury in 22 countries, representing all six of WHO regions of the world, InSCI is one of a very few surveys that highlights, not only the basic medical issues, but also the impact of SCI on the everyday lives of people. As well, the InSCI survey is part of a much larger project called the Learning Health System for SCI Initative (LHS-SCI) which includes implementation phase. The objective of this paper is to highlight some on-going and planned next steps at the national and international levels. The implementation phase of the LHS-SCI initiative, beginning with the publications of primary results and extending until 2023, will use the results of the InSCI survey as evidence for implementation of recommendations for improving the societal response to the needs of persons with SCI at the national level. As illustration of the variety of implementation activities currently underway, we provide country examples from Australia, Morocco, Malaysia, and Germany show the diversity of approaches to the implementation of InSCI data. The implementation phase of the LHS-SCI initiative promises to usher in a new era of SCI research that, at both international and national levels and across settings from clinical practice, health systems management, and national policy, will be seamlessly linked to on-going and effective implementation actions.

中文翻译:

国际脊髓损伤调查:前进之路

作为对 22 个国家的脊髓损伤患者的社区调查,代表了世界上所有六个世卫组织区域,InSCI 是为数不多的不仅强调基本医学问题,而且强调 SCI 对脊髓损伤的影响的调查之一。人们的日常生活。同样,InSCI 调查是一个更大的项目的一部分,称为 SCI 倡议学习健康系统 (LHS-SCI),其中包括实施阶段。本文的目的是强调在国家和国际层面正在进行和计划采取的一些后续步骤。LHS-SCI 倡议的实施阶段,从主要结果的发表开始,一直持续到 2023 年,将使用 InSCI 调查的结果作为实施建议的证据,以在国家层面改善社会对 SCI 患者需求的反应。作为目前正在进行的各种实施活动的说明,我们提供了来自澳大利亚、摩洛哥、马来西亚和德国的国家示例,展示了实施 InSCI 数据的方法的多样性。LHS-SCI 计划的实施阶段有望开创 SCI 研究的新时代,在国际和国家层面以及跨临床实践、卫生系统管理和国家政策的环境中,将与正在进行的和有效的实施行动。摩洛哥、马来西亚和德国展示了实施 InSCI 数据的方法的多样性。LHS-SCI 计划的实施阶段有望开创 SCI 研究的新时代,在国际和国家层面以及跨临床实践、卫生系统管理和国家政策的环境中,将与正在进行的和有效的实施行动。摩洛哥、马来西亚和德国展示了实施 InSCI 数据的方法的多样性。LHS-SCI 计划的实施阶段有望开创 SCI 研究的新时代,在国际和国家层面以及跨临床实践、卫生系统管理和国家政策的环境中,将与正在进行的和有效的实施行动。
更新日期:2020-12-01
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