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What People with Parkinson's Disease Want.
Journal of Parkinson’s Disease ( IF 5.2 ) Pub Date : 2020-07-08 , DOI: 10.3233/jpd-202107
John Andrejack 1 , Soania Mathur 2
Affiliation  

Abstract

Parkinson’s disease is an incurable, progressive neurodegenerative disease. This condition is complicated by the varying symptoms in individuals who differ in age of onset, symptoms, progression of disease, response to treatment and prognosis. In this paper, we focus on quality of life achieved through a combination of comprehensive health care, continuous support, and self care. Determining what people with Parkinson’s disease want is like assembling multiple puzzles simultaneously. While we surmise that patient centered care, support programs, access to comprehensive health care, and relevant symptom control are pieces of this puzzle, more longitudinal studies— which are observational in nature and correlate the impact of symptoms with patients’ reported needs— are necessary.



中文翻译:

帕金森病患者需要什么。

摘要

帕金森病是一种无法治愈的进行性神经退行性疾病。由于发病年龄、症状、疾病进展、对治疗的反应和预后不同,个体的不同症状使这种情况变得复杂。在本文中,我们关注通过综合医疗保健、持续支持和自我保健相结合实现的生活质量。确定帕金森病患者想要什么就像同时组装多个谜题。虽然我们推测以患者为中心的护理、支持计划、获得全面的医疗保健和相关的症状控制是这个难题的一部分,但更多的纵向研究——本质上是观察性的并将症状的影响与患者报告的需求相关联——是必要的.

更新日期:2020-07-10
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