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Pacific meets west in addressing palliative care for Pacific populations in Aotearoa/New Zealand: a qualitative study.
BMC Palliative Care ( IF 3.1 ) Pub Date : 2020-07-08 , DOI: 10.1186/s12904-020-00604-2
Sunia Foliaki 1 , Veisinia Pulu 1 , Hayley Denison 1 , Mark Weatherall 2 , Jeroen Douwes 1
Affiliation  

While many Aotearoa/New Zealanders are receiving excellent palliative care the Pacific populations have limited access to available hospice and palliative care services. Little research has been conducted to identify barriers unique to Pacific populations accessing these services. The purpose of this study was to explore key stakeholders’ perspectives on the determinants of low access among Pacific populations to these services. Forty-five semi-structured interviews were conducted face-to-face with hospice patients and their families, hospice/health providers and key informants from the Auckland and Wellington region of Aotearoa/New Zealand. The interviews were recorded and transcribed verbatim and a thematic analysis was carried out by identifying, coding and categorising patterns in the data. Identified themes were then discussed further to determine the relevance of the data grouped by theme. Five interrelated themes affecting access emerged: perception of hospice (often negative) through lack of accurate information, but changing; families’ role to look after their own and sick elderly; hospice experiences; continuity of care in the community and the need for information and communication. Hospice and associated palliative care services are under-utilised and commonly misunderstood among Pacific populations in Aotearoa/New Zealand. There is active support following appropriate information received, hence the need for community education and culturally appropriate hospice and palliative services. Inadequate inter-professional communication contributes to polypharmacy and inefficiency in continuity of care across all levels. The Pacific individual is one component of a collective that is critical in major decisions in end-of-life and life changing situations. The findings may guide policies and further research to improve Hospice and Palliative services in Aotearoa/New Zealand.

中文翻译:

一项关于定性研究的研究,太平洋与西方在解决对奥特罗阿/新西兰的太平洋人口的姑息治疗方面。

尽管许多奥特罗阿/新西兰人都获得了出色的姑息治疗,但太平洋地区的人们获得可用的临终关怀和姑息治疗服务的机会有限。为确定太平洋人口获得这些服务所特有的障碍,很少进行研究。这项研究的目的是探讨主要利益相关者对太平洋人口无法获得这些服务的决定因素的观点。与来自奥克兰和新西兰奥特罗阿地区的惠灵顿地区的临终关怀患者及其家属,临终关怀/卫生服务提供者和关键线人进行了四十五次半结构化访谈。记录访谈并逐字记录,并通过识别,编码和分类数据中的模式进行主题分析。然后进一步讨论了确定的主题,以确定按主题分组的数据的相关性。五个影响获取的相互关联的主题出现了:由于缺乏准确的信息而不断变化的临终关怀感(通常是负面的);家庭照顾自己和患病老人的作用;临终关怀的经历;社区护理的连续性以及信息和沟通的需求。临终关怀和相关的姑息治疗服务未得到充分利用,并且在新西兰奥特罗阿的太平洋人口中通常被误解。在收到适当的信息后会得到积极的支持,因此需要社区教育以及在文化上适当的临终关怀和姑息治疗。专业间的沟通不足会导致多药房和各级保健连续性的低效率。太平洋个人是集体的一个组成部分,对于生命终结和生活变化的情况下的重大决策至关重要。这些发现可以指导政策和进一步研究,以改善新西兰奥特罗阿的临终关怀和姑息治疗。
更新日期:2020-07-08
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