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Strengthening the spiritual domain in palliative care through a listening consultation service by spiritual caregivers in Dutch PaTz-groups: an evaluation study.
BMC Palliative Care ( IF 3.1 ) Pub Date : 2020-06-29 , DOI: 10.1186/s12904-020-00595-0
Hanna T Klop 1 , Ian Koper 1 , Bart P M Schweitzer 1, 2, 3 , Esli Jongen 4 , Bregje D Onwuteaka-Philipsen 1, 3
Affiliation  

Palliative care should be holistic, but spiritual issues are often overlooked. General practitioners and nurses working together in PaTz-groups (palliative home care groups) consider spiritual issues in palliative care to be relevant, but experience barriers in addressing spiritual issues and finding spiritual caregivers. This study evaluates the feasibility and perceived added value of a listening consultation service by spiritual caregivers in primary palliative care. From December 2018 until September 2019, we piloted a listening consultation service in which spiritual caregivers joined 3 PaTz-groups whose members referred patients or their relatives with spiritual care needs to them. Evaluation occurred through (i) monitoring of the implementation, (ii) in-depth interviews with patients (n = 5) and involved spiritual caregivers (n = 5), (iii) short group interviews in 3 PaTz-groups (17 GPs, 10 nurses and 3 palliative consultants), and (iv) questionnaires filled out by the GP after each referral, and by the spiritual caregiver after each consultation. Data was analysed thematically and descriptively. Consultations mostly took place on appointment at the patients home instead of originally intended walk-in consultation hours. Consultations were most often with relatives (72%), followed by patients and relatives together (17%) and patients (11%). Relatives also had more consecutive consultations (mean 4.1 compared to 2.2 for patients). Consultations were on existential and relational issues, loss, grief and identity were main themes. Start-up of the referrals took more time and effort than expected. In time, several GPs of each PaTz-group referred patients to the spiritual caregiver. In general, consultations and joint PaTz-meetings were experienced as of added value. All patients and relatives as well as several GPs and nurses experienced more attention for and awareness of the spiritual domain. Patients and relatives particularly valued professional support of spiritual caregivers, as well as recognition of grief as an normal aspect of life. If sufficient effort is given to implementation, listening consultation services can be a good method for PaTz-groups to find and cooperate with spiritual caregivers, as well as for integrating spiritual care in primary palliative care. This may strengthen care in the spiritual domain, especially for relatives who are mourning.

中文翻译:

通过荷兰PaTz小组的精神照料者的听力咨询服务来加强姑息治疗的精神领域:一项评估研究。

姑息治疗应该是整体的,但是精神问题经常被忽视。在PaTz小组(姑息家庭护理小组)中共同工作的全科医生和护士认为姑息治疗中的精神问题是相关的,但在解决精神问题和寻找精神照顾者时遇到障碍。这项研究评估了精神护理人员在初级姑息治疗中进行听力咨询服务的可行性和感知的附加价值。从2018年12月到2019年9月,我们试办了听力咨询服务,其中精神护理人员加入了3个PaTz组,其成员将有精神护理需求的患者或其亲属推荐给他们。通过(i)监测实施情况(ii)对患者进行深入访谈(n = 5)和涉及精神护理人员(n = 5)进行评估,(iii)在3个PaTz组中进行的简短小组访谈(17名GP,10名护士和3名姑息顾问),以及(iv)GP在每次转诊后填写的问卷,以及每次咨询后由精神护理人员填写的问卷。对数据进行了主题和描述性分析。咨询大多是在患者家中进行的,而不是原先打算的咨询时间。咨询最多的是亲戚(72%),其次是患者和亲戚(17%)和患者(11%)。亲戚也进行了更多的连续会诊(患者平均为4.1,而患者为2.2)。磋商是关于存在和关系问题的,主题是迷失,悲伤和认同。转介的启动花费了比预期更多的时间和精力。及时,每个PaTz组的几位全科医生将患者转介给精神照料者。总的来说,咨询和联合PaTz会议具有附加值。所有患者和亲戚以及几位全科医生和护士都对精神领域有了更多的关注和认识。患者和亲戚特别重视精神照料者的专业支持,以及将悲伤视为生活的正常方面。如果尽全力实施,聆听咨询服务可能是PaTz小组寻找和与精神护理人员合作的好方法,以及将精神护理与初级姑息治疗相结合的好方法。这可能会加强精神领域的护理,尤其是对正在哀悼的亲戚。磋商和PaTz联合会议具有附加价值。所有患者和亲戚以及几位全科医生和护士都对精神领域有了更多的关注和认识。患者和亲属特别重视精神照料者的专业支持,以及将悲伤视为生活的正常方面。如果尽全力实施,聆听咨询服务可能是PaTz小组寻找和与精神护理人员合作的好方法,以及将精神护理与初级姑息治疗相结合的好方法。这可能会加强精神领域的护理,尤其是对正在哀悼的亲戚。磋商和PaTz联合会议具有附加价值。所有患者和亲戚以及几位全科医生和护士都对精神领域有了更多的关注和认识。患者和亲属特别重视精神照料者的专业支持,以及将悲伤视为生活的正常方面。如果尽全力实施,聆听咨询服务可能是PaTz小组寻找和与精神护理人员合作的好方法,以及将精神护理与初级姑息治疗相结合的好方法。这可能会加强精神领域的护理,尤其是对正在哀悼的亲戚。患者和亲属特别重视精神照料者的专业支持,以及将悲伤视为生活的正常方面。如果尽全力实施,聆听咨询服务可能是PaTz小组寻找和与精神护理人员合作的好方法,以及将精神护理与初级姑息治疗相结合的好方法。这可能会加强精神领域的护理,尤其是对正在哀悼的亲戚。患者和亲属特别重视精神照料者的专业支持,以及将悲伤视为生活的正常方面。如果尽全力实施,聆听咨询服务可能是PaTz小组寻找和与精神护理人员合作的好方法,以及将精神护理与初级姑息治疗相结合的好方法。这可能会加强精神领域的护理,尤其是对正在哀悼的亲戚。
更新日期:2020-06-29
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