Objective: To explore the burden associated with childhood ADHD in a large observational study. Methods: We recruited familes with at least one child (6-18 years) with ADHD via 15 NHS trusts in the UK, and collected data from all family members. We made careful adjustments to ensure a like-for-like comparison with two different control groups, and explored the impact of controlling for a positive parental/carer ADHD screen, employment, and relationship status. Results: We found significant negative impacts of childhood ADHD on parents’/carers’ hours and quality of sleep, satisfaction with leisure time, and health-related quality of life (measured by the EuroQol-5D [EQ-5D]). We found a decrement in life satisfaction, mental well-being (as measured by the Short–Warwick Edinburgh Mental Well-Being Scale [S-WEMWBS]), and satisfaction with intimate relationships, but this was not always robust across the different control groups. We did not find any decrement in satisfaction with health, self-reported health status, or satisfaction with income. Conclusion: The study quantifies the impact on the health and well-being of parents living with a child with ADHD using a survey of families attending ADHD clinics in the United Kingdom.

目的：在一项大型观察性研究中探讨与儿童 ADHD 相关的负担。方法：我们通过英国的 15 个 NHS 信托机构招募了至少有一名儿童（6-18 岁）患有 ADHD 的家庭，并收集了所有家庭成员的数据。我们进行了仔细的调整，以确保与两个不同的对照组进行同类比较，并探讨了控制积极的父母/照顾者 ADHD 筛查、就业和关系状态的影响。结果：我们发现儿童多动症对父母/照顾者的时间和睡眠质量、对休闲时间的满意度以及与健康相关的生活质量（通过 EuroQol-5D [EQ-5D] 衡量）有显着的负面影响。我们发现生活满意度、心理健康（由 Short-Warwick Edinburgh Mental Well-Being Scale [S-WEMWBS] 测量）和对亲密关系的满意度有所下降，但这在不同的对照组中并不总是很强劲. 我们没有发现对健康的满意度、自我报告的健康状况或对收入的满意度有任何下降。结论：该研究通过对英国多动症诊所就诊的家庭进行的调查，量化了与多动症儿童一起生活的父母对健康和福祉的影响。