Individuals with cancer and their families assume responsibility for management of cancer as an acute and chronic disease. Yet, cancer lags other chronic diseases in its provision of proactive self-management support (SMS) in routine ‘everyday’ care leaving this population vulnerable to worse health status, long-term disability and poorer survival. Enabling cancer patients to manage the medical, emotional consequences, and lifestyle/work changes due to cancer and treatment is essential to optimizing health and recovery across the continuum of cancer. In this paper, the Global Partners on Self-Management in Cancer (GPS) puts forth six priority areas for action. Action 1: Prepare patients/survivors for active involvement in care. Action 2: Shift the care culture to support patients as partners in co-creating health and embed self-management support in everyday health care provider practices and in care pathways. Action 3: Prepare the workforce in the knowledge and skills necessary to enable patients in effective self-management and reach consensus on core curricula. Action 4: Establish and reach consensus on a patient reported outcome system for measuring the effects of self-management support and performance accountability. Action 5: Advance the evidence and stimulate research on self-management and self-management support in cancer populations. Action 6: Expand reach and access to self-management support programs across care sectors and tailored to diversity of need, and stimulation of research to advance knowledge. It’s time for a revolution to better integrate self-management support as part of high quality, person-centered support and precision medicine in cancer care to optimize health outcomes, accelerate recovery and possibly improve survival.

中文翻译：

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门诊就诊后的癌症与健康管理：呼吁在癌症护理中进行自我管理。

癌症患者及其家人承担将癌症作为一种急性和慢性疾病进行管理的责任。然而，癌症在常规“日常”护理中提供主动自我管理支持 (SMS) 方面落后于其他慢性病，这使该人群容易受到更差的健康状况、长期残疾和更差的生存率的影响。使癌症患者能够管理因癌症和治疗引起的医疗、情感后果以及生活方式/工作变化，这对于在整个癌症过程中优化健康和恢复至关重要。在本文中，癌症自我管理全球合作伙伴 (GPS) 提出了六个优先行动领域。行动 1：让患者/幸存者做好积极参与护理的准备。行动二：转变护理文化，支持患者作为合作伙伴共同创造健康，并将自我管理支持嵌入日常医疗保健提供者的实践和护理途径中。行动 3：让员工掌握必要的知识和技能，使患者能够进行有效的自我管理并就核心课程达成共识。行动 4：就用于衡量自我管理支持和绩效问责效果的患者报告结果系统建立并达成共识。行动 5：推进证据并促进对癌症人群自我管理和自我管理支持的研究。行动 6：扩大范围和获得跨护理部门的自我管理支持计划，并根据需求的多样性和刺激研究来推进知识。