Abstract Person-centered, family-oriented services are integral to palliative and end-of-life care. Effective communication with providers informs the quality of the dying experience for patients and how families fare in bereavement. This paper reports findings from a study exploring how communication and care in the later stages of an advanced illness influence family caregivers’ well-being in bereavement. A concurrent triangulation design was used to analyze data collected during semi-structured interviews with 108 recently bereaved caregivers from a single hospice agency in Western New York. Findings from this study suggest that family caregivers assume the role of interpreter and advocate while engaged in both formal and informal communication with health care providers at the end of care-recipients’ lives. Findings also suggest that families are more likely to feel emotionally prepared for loss and grief when health care providers are available to communicate in a concise, consistent, and compassionate manner. The results illuminate the important connection between communication during the transition from late-stage illness to end-of-life care and preparation for bereavement. The paper concludes with a discussion of how findings from this study align with recent concerted efforts to establish standards and competencies for social work education and practice in palliative care.

中文翻译：

---

导航从高级疾病到丧亲的过渡：提供者沟通如何告知与家庭相关的角色和需求

摘要以人为本，面向家庭的服务是姑息治疗和临终关怀的组成部分。与提供者的有效沟通可为患者提供垂死的经验，以及家人丧亲之痛。本文报告了一项研究的发现，该研究探讨了晚期疾病后期的沟通和护理如何影响家庭护理人员的丧亲福利。同时三角剖分设计用于分析来自纽约西部一家临终关怀机构的108名最近失去亲人的看护人的半结构式访谈中收集的数据。这项研究的结果表明，家庭护理人员在接受护理人员生命终止时与医疗服务提供者进行正式和非正式沟通时，可以扮演口译和倡导者的角色。研究结果还表明，当医疗保健提供者能够以简洁，一致和富有同情心的方式进行沟通时，家庭更有可能为失去和悲伤的情绪做好准备。结果阐明了从晚期疾病到临终关怀过渡期间的沟通与丧亲准备之间的重要联系。本文最后讨论了这项研究的结果如何与近期为建立姑息治疗社会工作教育和实践标准和能力的共同努力相一致。结果阐明了从晚期疾病到临终关怀过渡期间的沟通与丧亲准备之间的重要联系。本文最后讨论了这项研究的结果如何与最近为建立姑息治疗社会工作教育和实践标准和能力的共同努力相一致。结果阐明了从晚期疾病到临终关怀过渡期间的沟通与丧亲准备之间的重要联系。本文最后讨论了这项研究的结果如何与近期为建立姑息治疗社会工作教育和实践标准和能力的共同努力相一致。