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Supporting the Health and Well-being of Caregivers: Co-design in Practice at a Canadian Cardiac Care Center
Journal of Cardiovascular Nursing ( IF 2 ) Pub Date : 2020-05-01 , DOI: 10.1097/jcn.0000000000000678
Karen Bouchard , Jane Brownrigg , Bonnie Quinlan , Jean Bilodeau , Gloria Higdon , Heather Tulloch

Background 

Caregivers contribute substantially to patients' management of and recovery from cardiovascular disease (CVD). Yet, the distress that many caregivers experience in this role continues to be underresearched and their needs undersupported.

Purpose 

Situated within a patient engagement framework and adapted from experience-based co-design guidelines, the process of developing a comprehensive caregiver support resource with joint contributions from caregivers and healthcare providers representing multiple disciplines is described. A discussion of the challenges encountered during the development of the caregiver support resource and recommendations for future sites embarking on co-design work are noted.

Conclusion 

Developing feasible and relevant approaches, such as informational support instruments, to meet the needs of the growing population of CVD caregivers is essential.

Clinical Implications 

Although co-design processes are often complex, take more time and resources to implement, and involve multiple levels of an organization and community than traditional practices, these efforts may help to improve healthcare quality to stem the burden of CVD.



中文翻译:

支持护理人员的健康和福祉:加拿大心脏护理中心的协同设计实践

背景 

护理人员对心血管疾病 (CVD) 患者的管理和康复做出了重大贡献。然而,许多照顾者在这个角色中所经历的痛苦仍然没有得到充分研究,他们的需求也没有得到充分支持。

目的 

位于患者参与框架内并改编自基于经验的共同设计指南,描述了开发综合护理人员支持资源的过程,该资源来自代表多个学科的护理人员和医疗保健提供者的共同贡献。讨论了在开发护理人员支持资源过程中遇到的挑战,以及对未来开始协同设计工作的站点的建议。

结论 

开发可行和相关的方法,例如信息支持工具,以满足不断增长的 CVD护理人员的需求至关重要。

临床意义 

尽管与传统做法相比,协同设计过程通常很复杂,需要更多的时间和资源来实施,并且涉及组织和社区的多个层面,但这些努力可能有助于提高医疗保健质量,以遏制 CVD 的负担。

更新日期:2020-05-01
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