Children with intellectual disability are susceptible to poor experiences of care and treatment outcomes, and this may compound existing health inequities. Evidence to date indicates three priority areas that must be addressed in order to reduce these inequities in the safety and quality of care for children with intellectual disability. Firstly, we need reliable methods to identify children with intellectual disability so that healthcare organizations understand their needs. Secondly, we need to develop quality metrics that can assess care quality and unwarranted care variation for children with intellectual disability in hospital. Finally, for a comprehensive understanding of the safety and quality of care for these children, and how to improve, it is critical that healthcare organizations partner with parents/carers and enable children with intellectual disability to voice their experiences of care. Children with intellectual disability have higher healthcare utilization than their peers; yet, their voice is rarely sought to optimize the safety and quality of their healthcare experience. Patient experience narratives enhance our understanding of the genesis of adverse events. By addressing these priorities, children with intellectual disability will be identified, and health services will measure and understand the problematic and beneficial variations in care delivery and can then effectively partner with children and their parents/carers to address the inequities in care quality and create safer healthcare.

中文翻译：

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为住院智障儿童创造公平的医疗质量和安全。

智障儿童容易受到护理和治疗结果不佳的影响，这可能会加剧现有的健康不平等。迄今为止的证据表明，必须解决三个优先领域，以减少智障儿童在安全和护理质量方面的不公平现象。首先，我们需要可靠的方法来识别智障儿童，以便医疗机构了解他们的需求。其次，我们需要制定质量指标，以评估住院智障儿童的护理质量和无根据的护理变化。最后，为了全面了解这些儿童的安全和护理质量，以及如何改进，医疗保健组织与父母/照顾者合作并让智障儿童能够表达他们的照顾经历至关重要。智障儿童的医疗保健利用率高于同龄人；然而，很少寻求他们的声音来优化他们的医疗保健体验的安全性和质量。患者经历叙述增强了我们对不良事件发生的理解。通过解决这些优先事项，智障儿童将被识别，卫生服务将衡量和了解护理服务中存在问题和有益的变化，然后可以有效地与儿童及其父母/护理人员合作，以解决护理质量的不公平问题并创造更安全的环境。卫生保健。智障儿童的医疗保健利用率高于同龄人；然而，很少寻求他们的声音来优化他们的医疗保健体验的安全性和质量。患者经历叙述增强了我们对不良事件发生的理解。通过解决这些优先事项，智障儿童将被识别，卫生服务将衡量和了解护理服务中存在问题和有益的变化，然后可以有效地与儿童及其父母/护理人员合作，以解决护理质量的不公平问题并创造更安全的环境。卫生保健。智障儿童的医疗保健利用率高于同龄人；然而，很少寻求他们的声音来优化他们的医疗保健体验的安全性和质量。患者经历叙述增强了我们对不良事件发生的理解。通过解决这些优先事项，智障儿童将被识别，卫生服务将衡量和了解护理服务中存在问题和有益的变化，然后可以有效地与儿童及其父母/护理人员合作，以解决护理质量的不公平问题并创造更安全的环境。卫生保健。患者经历叙述增强了我们对不良事件发生的理解。通过解决这些优先事项，智障儿童将被识别，卫生服务将衡量和了解护理服务中存在问题和有益的变化，然后可以有效地与儿童及其父母/护理人员合作，以解决护理质量的不公平问题并创造更安全的环境。卫生保健。患者经历叙述增强了我们对不良事件发生的理解。通过解决这些优先事项，智障儿童将被识别，卫生服务将衡量和了解护理服务中存在问题和有益的变化，然后可以有效地与儿童及其父母/护理人员合作，以解决护理质量的不公平问题并创造更安全的环境。卫生保健。