Introduction: To address ethical concerns about the of future research authorization, biobanks employing a broad model of consent can design ongoing communication with contributors. Notifying contributors at the time of sample distribution provides one form of communication to supplement broad consent. However, little is known about how community-informed governance might anticipate contributor responses and inform communication efforts. Objective: We explored the attitudes of members of a three-site Community Advisory Board (CAB) network. CAB members responded to a hypothetical proposal for notifying biobank contributors at the time of sample distribution to researchers utilizing the biobank. Methods: We used regularly scheduled CAB meetings to facilitate 3 large-group and 6 small-group discussions. Discussions were audio-recorded, transcribed, and analyzed for thematic content using descriptive thematic analysis. Results: The results challenged our expectation of general support for the proposed communications. While CAB members identified some advantages, they were concerned about several potential harms to biobank contributors and the biobank. The CABs understood biobank communication in terms of an ongoing relationship with the biobank and a personal contribution to research. Conclusion:Our findings contribute to the emerging literature on community engagement in biobanking. Additional communication with biobank contributors can serve a variety of value-based objectives to supplement broad consent. Design of communication efforts by biobanks can be improved by CAB members’ anticipation of the unintended consequences of additional contact with contributors. CAB members’ holistic interpretation of communication efforts suggests that biobank leadership considers all communication options as part of a more comprehensive communications strategy.

中文翻译：

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即时通知：社区咨询委员会对生物库沟通的看法，以补充广泛的同意

简介：为了解决有关未来研究授权的伦理问题，采用广泛同意模式的生物库可以设计与贡献者的持续沟通。在样本分发时通知贡献者提供了一种补充广泛同意的沟通形式。然而，关于社区知情治理如何预测贡献者的反应并为沟通工作提供信息知之甚少。目标：我们探讨了三站点社区咨询委员会 (CAB) 网络成员的态度。CAB 成员回应了一项假设提案，即在样本分发时通知生物库贡献者给利用生物库的研究人员。方法：我们使用定期安排的 CAB 会议来促进 3 个大小组和 6 个小组讨论。讨论被录音、转录，并使用描述性主题分析来分析主题内容。结果：结果挑战了我们对拟议通信的普遍支持的预期。虽然 CAB 成员确定了一些优势，但他们担心对生物库贡献者和生物库的一些潜在危害。CAB 从与生物库的持续关系和个人对研究的贡献来理解生物库的沟通。结论：我们的研究结果有助于关于社区参与生物样本库的新兴文献。与生物样本库贡献者的额外沟通可以服务于各种基于价值的目标，以补充广泛的同意。生物样本库的交流工作设计可以通过 CAB 成员对与贡献者额外接触的意外后果的预期来改进。