ABSTRACT Background Conversation Partner schemes are increasingly used as a way of addressing the psychosocial and emotional consequences of aphasia, providing opportunities for people with aphasia to engage in authentic conversation and to develop social relationships. As yet, there are no outcome measures, that are theorised to match what is expected to change and how such changes are best identified, and that specifically address the constructs of Conversation Partner schemes. Aims This study aimed to develop a new, theoretically motivated and accessible patient-reported outcome measure for evaluating the experiences of people with aphasia involved in Conversation Partner schemes, and for assessing the impact of schemes on areas of importance to people with aphasia. Methods & procedures A mixed-methods study was undertaken in two phases. Phase 1 (item generation) used semi-structured one-to-one interviews and focus groups, which were subject to thematic analysis; Nominal Group Technique was used to develop and refine the item pool. In Phase 2 cognitive interviews were used to examine content validity; structural validity was examined using statistical methods (exploratory factor analysis; Rasch model analysis). Outcomes & results Six themes from interviews and focus groups were developed into 41 candidate items through Nominal Group Technique. Item reduction through cognitive interviewing produced a 30-item scale, which was piloted and then field-tested by 123 community-dwelling adults with aphasia; 121 responses were subject to exploratory factor analysis and further item reduction, producing a four factor, 14-item scale. Rasch analysis demonstrated overall fit to the Rasch model and excellent targeting of items to person. Creation of 3 testlets by grouping items together accommodated the dependence found between pairs of items. Conclusions The Conversation and Communication Questionnaire for people with Aphasia V3 is a 14-item, patient-reported measure for use with patients with aphasia taking part in Conversation Partner schemes. It is concise, has strong content validity, and has some supporting evidence of construct validity. Further research is needed to test its reliability and responsiveness.

中文翻译：

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对话伙伴计划的患者报告结果测量的开发和初步验证：失语症患者的对话和交流问卷 (CCQA)

摘要背景对话伙伴计划越来越多地被用作解决失语症的社会心理和情感后果的一种方式，为失语症患者提供参与真实对话和发展社会关系的机会。到目前为止，还没有结果衡量标准，理论上可以匹配预期的变化以及如何最好地识别此类变化，并且专门针对对话伙伴计划的结构。目的 本研究旨在开发一种新的、理论上有动机且可访问的患者报告结果衡量标准，用于评估参与对话伙伴计划的失语症患者的经历，并评估计划对失语症患者重要领域的影响。方法和程序 混合方法研究分两个阶段进行。第一阶段（项目生成）使用半结构化的一对一访谈和焦点小组，并进行主题分析；名义组技术用于开发和完善项目池。在第 2 阶段，认知访谈用于检查内容有效性；使用统计方法（探索性因素分析；Rasch 模型分析）检查结构有效性。结果与结果 来自访谈和焦点小组的六个主题通过名义小组技术发展为 41 个候选项目。通过认知访谈减少​​项目产生了一个 30 个项目的量表，该量表由 123 名社区失语成人进行试点和现场测试；121 个回答进行了探索性因素分析和进一步的项目减少，产生了一个四因素、14 个项目的量表。Rasch 分析表明总体适合 Rasch 模型，并且可以很好地将物品定位到人。通过将项目分组在一起来创建 3 个 testlets 以适应在项目对之间发现的依赖性。结论 失语症 V3 患者的对话和交流问卷是一个 14 项、患者报告的量表，用于参与对话伙伴计划的失语症患者。它简明扼要，具有很强的内容效度，并有一些结构效度的支持证据。需要进一步的研究来测试其可靠性和响应性。用于参与对话伙伴计划的失语症患者的患者报告测量。它简明扼要，具有很强的内容效度，并有一些结构效度的支持证据。需要进一步的研究来测试其可靠性和响应性。用于参与对话伙伴计划的失语症患者的患者报告测量。它简明扼要，具有很强的内容效度，并有一些结构效度的支持证据。需要进一步的研究来测试其可靠性和响应性。