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Supporting children and young people with an acquired brain injury (ABI) and their siblings: The experience of a camp for families with a child with an ABI
Neuropsychological Rehabilitation ( IF 2.7 ) Pub Date : 2020-02-26 , DOI: 10.1080/09602011.2020.1731556
Penelope Analytis 1, 2 , Narelle Warren 3 , Jennie Ponsford 1, 2
Affiliation  

Paediatric acquired brain injury (ABI) is associated with long-term negative sequelae, and families must continually adapt to meet the needs of the child with ABI and family members. Condition-specific camps may support families in this process. This study explored the experience of camps for children with ABI and their families from the perspective of children and young people with ABI and their siblings. Semi-structured interviews were conducted with 10 people with ABI (Mage = 23.93, SD = 16.52 years) and 19 siblings of people with ABI (Mage = 14.53, SD = 5.73 years). Using reflexive thematic analysis, the central theme identified was "My safe space," supported by three further themes: "Having fun and relaxing," "Making friends," and "Enjoying choices." Camp was a space where the shared understanding and acceptance of ABI created a sense of safety. This was facilitated by enjoying activities, developing friendships with peers who shared the experience of ABI, and having a sense of control through choice availability. Thus, camps appear to offer opportunities to enjoy typical childhood experiences while restoring a sense of security, increasing understanding of ABI and validating attendees' experiences. Camps may, therefore, offer low-cost interventions to support children with ABI and their families.

中文翻译:

支持患有后天性脑损伤 (ABI) 的儿童和青少年及其兄弟姐妹:为有 ABI 儿童的家庭举办营地的经历

小儿获得性脑损伤 (ABI) 与长期阴性后遗症有关,家庭必须不断适应以满足患有 ABI 的孩子和家庭成员的需求。特定条件的营地可以在此过程中为家庭提供支持。本研究从 ABI 儿童和青少年及其兄弟姐妹的角度探讨了 ABI 儿童及其家庭的营地经历。对 10 名 ABI 患者(Mage = 23.93,SD = 16.52 岁)和 19 名 ABI 患者的兄弟姐妹(Mage = 14.53,SD = 5.73 岁)进行了半结构化访谈。使用反身主题分析,确定的中心主题是“我的安全空间”,由三个进一步的主题支持:“玩得开心和放松”、“结交朋友”和“享受选择”。营地是一个空间,在那里对 ABI 的共同理解和接受创造了一种安全感。这是通过享受活动、与分享 ABI 经验的同龄人建立友谊以及通过选择可用性获得控制感来促进的。因此,营地似乎提供了享受典型童年体验的机会,同时恢复安全感、增加对 ABI 的理解并验证参与者的体验。因此,营地可以提供低成本的干预措施来支持患有 ABI 的儿童及其家人。营地似乎提供了享受典型童年体验的机会,同时恢复安全感、增加对 ABI 的理解并验证参与者的体验。因此,营地可以提供低成本的干预措施来支持患有 ABI 的儿童及其家人。营地似乎提供了享受典型童年体验的机会,同时恢复安全感、增加对 ABI 的理解并验证参与者的体验。因此,营地可以提供低成本的干预措施来支持患有 ABI 的儿童及其家人。
更新日期:2020-02-26
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