After a person experiences an acquired brain injury (ABI), there can be grieving for what has been lost. Little is known about the loss felt by relatives of people with ABI. This study investigates concepts of loss among individuals with ABI and their families. Forty participants, recruited from a brain injury charity client pool, took part in a semi-structured interview. Of the participants, 17 were in dyadic relationships (53% spouses, 41% parent/child and 6% sibling relationships). They also completed the Brain Injury Grief Inventory (BIGI; Coetzer, B. R., Vaughan, F. L., & Ruddle, J. A. (2003). The Brain Injury Grief Inventory. Unpublished Manuscript. North Wales Brain Injury Service, Conwy & Denbighshire NHS Trust) as a quantitative measure of loss after ABI. Five main themes emerged from the interviews: loss of person; loss of relationships; loss of activity/ability; loss of future; unclear loss. There were distinct differences qualitatively between individuals and relatives and only two dyads experienced similar loss, but there were no significant differences in loss as measured quantitatively by the BIGI. The differences between relatives' loss and individuals with ABIs' loss are discussed. This research suggests that it is important when supporting families to consider individual experiences, because even though the loss originates from the same injury, the loss as experienced may substantially differ among those affected by it.

中文翻译：

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获得性脑损伤后的个人和家庭损失经历：多方法调查

在一个人经历后天性脑损伤 (ABI) 后，可能会为失去的东西感到悲伤。人们对 ABI 患者的亲属所感受到的损失知之甚少。本研究调查了 ABI 患者及其家人的损失概念。从脑损伤慈善客户群中招募的 40 名参与者参加了半结构化面试。在参与者中，17 人处于二元关系（53% 的配偶、41% 的父母/子女和 6% 的兄弟姐妹关系）。他们还完成了脑损伤悲伤量表（BIGI; Coetzer, BR, Vaughan, FL, & Ruddle, JA (2003). The Brain Injury Grief Inventory. Unpublished Manuscript. North Wales Brain Injury Service, Conwy & Denbighshire NHS Trust）作为ABI 后损失的定量测量。访谈中出现了五个主要主题：人员流失；失去关系；活动/能力丧失；失去未来；不清楚的损失。个体和亲属之间在质量上存在明显差异，只有两个二人经历了类似的损失，但根据 BIGI 的定量测量，损失没有显着差异。讨论了亲属损失与 ABI 损失个人之间的差异。这项研究表明，在支持家庭时考虑个人经历很重要，因为即使损失源于相同的伤害，受其影响的人所经历的损失可能会有很大差异。但 BIGI 定量测量的损失没有显着差异。讨论了亲属损失与 ABI 损失个人之间的差异。这项研究表明，在支持家庭时考虑个人经历很重要，因为即使损失源于相同的伤害，受其影响的人所经历的损失可能会有很大差异。但 BIGI 定量测量的损失没有显着差异。讨论了亲属损失与 ABI 损失个人之间的差异。这项研究表明，在支持家庭时考虑个人经历很重要，因为即使损失源于相同的伤害，受其影响的人所经历的损失可能会有很大差异。