BACKGROUND Healthcare coproduction engages patients and clinicians to design and execute services, yet little is known about tools that facilitate coproduction. Our objective was to understand uptake, experiences, benefits, and limitations of a dashboard to support patient-clinician partnerships within the cystic fibrosis (CF) community. METHODS People living with CF (PwCF) and clinicians co-designed a dashboard that displayed patient-reported and clinical data. Eight CF programmes, including 21 clinicians, and 131 PwCF participated in a pilot study of the dashboard. We conducted descriptive statistics and thematic analyses of surveys (82 PwCF; 21 clinicians); semi-structured interviews (13 PwCF; 8 care teams); and passively-collected usage data. RESULTS Two-thirds of the 82 PwCF used the dashboard during a visit, and 59% used it outside a visit. Among 48 PwCF using the dashboard outside the clinic, 92% viewed their health information and 46% documented concerns or requests. Most of the 21 clinicians used the dashboard to support visit planning (76%); fewer used it during a visit (48%). The dashboard supported discussions of what matters most (69% PwCF; 68% clinicians). Several themes emerged: access to patient outcomes data allows users to learn more deeply; participation in pre-visit planning matters; coproduction is made possible by inviting new ways to partner; and lack of integration with existing information technology (IT) systems is limiting. CONCLUSIONS A dashboard was feasible to implement and use. Future iterations should provide patients access to their data, be simple to use, and integrate with IT systems in use by clinicians and PwCF.

中文翻译：

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支持在囊性纤维化中联合生产医疗保健服务的仪表板的形成性评估

背景技术医疗保健联合生产让患者和临床医生参与设计和执行服务，但对促进联合生产的工具知之甚少。我们的目标是了解仪表板的使用、经验、好处和局限性，以支持囊性纤维化 (CF) 社区内的患者-临床医生伙伴关系。方法 CF 患者 (PwCF) 和临床医生共同设计了一个显示患者报告和临床数据的仪表板。包括 21 名临床医生和 131 名 PwCF 在内的 8 个 CF 项目参与了仪表板的试点研究。我们对调查进行了描述性统计和主题分析（82 名普华永道；21 名临床医生）；半结构化面试（13 个普华永道；8 个护理团队）；和被动收集的使用数据。结果 82 名 PwCF 中有三分之二在访问期间使用仪表板，59% 在访问之外使用它。在 48 名在诊所外使用仪表板的 PwCF 中，92% 查看了他们的健康信息，46% 记录了疑虑或请求。21 名临床医生中的大多数使用仪表板来支持就诊计划 (76%)；访问期间使用它的人较少（48%）。仪表板支持讨论最重要的内容（69% PwCF；68% 临床医生）。出现了几个主题：访问患者结果数据可以让用户更深入地学习；参与探访前的规划事宜；通过邀请新的合作方式使联合制作成为可能；并且缺乏与现有信息技术 (IT) 系统的集成是限制性的。结论 仪表板是可行的实施和使用。未来的迭代应该让患者能够访问他们的数据，使用简单，并与临床医生和 PwCF 使用的 IT 系统集成。