Parkinson’s disease is the second most common neurodegenerative condition after Alzheimer’s disease. The number of patients will rise dramatically due to ageing of the population and possibly also due to environmental issues. It is widely recognised that the current models of care for people with Parkinson’s disease or a form of atypical parkinsonism lack continuity, are reactive to problems rather than proactive, and do not adequately support individuals to self-manage. Integrated models of care have been developed for other chronic conditions, with a range of positive effects. A multidisciplinary team of professionals in the United Kingdom and the Netherlands, all with a long history of caring for patients with movement disorders, used knowledge of deficiencies with the current model of care, an understanding of integrated care in chronic disease and the process of logic modelling, to develop a novel approach to the care of patients with Parkinson’s disease. We propose a new model, termed PRIME Parkinson (Proactive and Integrated Management and Empowerment in Parkinson’s Disease), which is designed to manage problems proactively, deliver integrated, multidisciplinary care, and empower patients and their carers. It has five main components: (1) personalised care management, (2) education and empowerment of patients and carers, (3) empowerment of healthcare professionals, (4) a population health approach, and (5) support of the previous four components by patient- and professional-friendly technology. Having mapped the processes required for the success of this initiative, there is now a requirement to assess its effect on health-related and quality of life outcomes as well as determining its cost-effectiveness. In the next phase of the project, we will implement PRIME Parkinson in selected areas of the United Kingdom and the Netherlands.

中文翻译：

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帕金森氏病的积极，综合管理和赋权：设计新的护理模式。

帕金森氏病是仅次于阿尔茨海默氏病的第二大最常见的神经退行性疾病。由于人口老龄化以及可能由于环境问题，患者数量将急剧增加。众所周知，目前的帕金森氏病或非典型帕金森病患者护理模式缺乏连续性，对问题有反应而不是主动，并且不能充分支持个人进行自我管理。已经为其他慢性病开发了综合护理模式，并产生了一系列积极影响。英国和荷兰的一支多学科专业团队拥有悠久的护理运动障碍患者的历史，他们利用不足之处了解了目前的护理模式，对慢性病综合护理和逻辑建模过程的理解，从而开发出一种新颖的帕金森氏病患者护理方法。我们提出了一种新的模型，称为PRIME Parkinson（帕金森氏病的主动和综合管理与赋权），该模型旨在主动管理问题，提供综合，多学科的护理并赋予患者及其看护者权力。它包含五个主要组成部分：（1）个性化护理管理，（2）对患者和护理人员的教育和授权，（3）对医疗保健专业人员的授权，（4）人口健康方法以及（5）对前四个组成部分的支持通过耐心和专业友好的技术。绘制了该计划成功所需的流程，现在需要评估其对健康相关的生活质量和生活质量的影响，并确定其成本效益。在该项目的下一阶段，我们将在英国和荷兰的部分地区实施PRIME Parkinson。