BACKGROUND People living with Parkinson disease (PD) have multiple health care needs that intensify over time, because the disease is both chronic and degenerative. Past research indicates that issues with mobility, financial constraints, and lack of support networks impede access to health care for people with PD. These challenges are elevated for individuals who live in rural communities due to the lack of local health care professionals and specialists and support resources, and the need to travel to see providers/specialists. The research objective was to have PD community stakeholders identify health care barriers and resources as well as possibilities for improved health care in a rural state. METHODS Focus groups were conducted in the context of a community-based participatory research (CBPR) approach. Focus group data collection helped create comfort and parity in the discussion, while a CBPR approach allows for authenticity of the findings because members of the community in question are involved as researchers. The responses were recorded and transcribed verbatim. Coding and organizing of themes was completed manually and using NVIVO 10 software. RESULTS Qualitative analysis revealed three main themes, PD issues, access issues, and stigma. These themes described disease-related stigma and concerns about disease progression and treatment, as well as challenges in accessing information, providers, and support by the PD stakeholders. The study results provided insight into the needs of people living with PD in rural communities. CONCLUSIONS Rural PD stakeholders proposed the use of technology (e.g., telehealth) to provide support to improve health care for people with PD.

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考虑农村帕金森氏病社区的医疗保健需求。

背景技术患有帕金森氏病（PD）的人具有多种医疗保健需求，随着时间的流逝，医疗需求不断增加，因为该疾病既是慢性疾病又是退化性疾病。过去的研究表明，流动性，财务限制和缺乏支持网络的问题阻碍了PD患者获得医疗服务。由于缺乏当地的卫生保健专业人员和专家以及支持资源，以及需要出门拜访提供者/专家，农村地区居民面临的挑战越来越严峻。研究目的是让PD社区利益相关者确定农村地区的医疗保健障碍和资源以及改善医疗保健的可能性。方法焦点小组是在基于社区的参与性研究（CBPR）方法的背景下进行的。焦点小组的数据收集有助于在讨论中创造舒适感和均等性，而CBPR方法可以使调查结果具有真实性，因为相关社区的成员作为研究人员参与其中。记录答复并逐字记录。主题的编码和组织是使用NVIVO 10软件手动完成的。结果定性分析揭示了三个主要主题，PD问题，访问问题和污名。这些主题描述了与疾病相关的污名以及对疾病进展和治疗的担忧，以及在PD利益相关者获得信息，提供者和支持方面的挑战。该研究结果提供了对农村社区PD患者的需求的见解。结论农村PD利益相关者建议使用技术（例如，