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Contextualized Autonomy in Transitional Care for Youth With Neurologic Conditions: The Role of the Pediatric Neurologist.
Journal of Child Neurology ( IF 1.9 ) Pub Date : 2020-04-26 , DOI: 10.1177/0883073820918454
Aline Bogossian 1 , Annette Majnemer 2, 3 , Eric Racine 4, 5
Affiliation  

Youth with neurologic conditions experience multiple life transitions. The transfer from pediatric to adult health care systems exemplifies one such complex and multifaceted transition that occurs in parallel with developmental, legal, and social changes that may influence the roles and responsibilities of youth and their caregivers. As a result, ethical situations, questions, and challenges may surface in transition care to which pediatric neurologists may be confronted. In this article, we focus on the topic of autonomy and situations that may arise in transition care in the context of pediatric neurology. Building from a clinical case, we present the concept of contextualized autonomy to work through the questions that arise in the case and propose ways of thinking through those challenging situations in transition care.

中文翻译:

神经系统疾病青少年过渡期护理中的情境化自主:小儿神经病学家的作用。

患有神经系统疾病的青少年会经历多次人生转变。从儿科到成人卫生保健系统的转变就是这样一种复杂和多方面的转变,这种转变与可能影响青年及其照顾者的角色和责任的发展、法律和社会变化同时发生。因此,儿科神经科医生可能面临的过渡护理中可能会出现伦理状况、问题和挑战。在本文中,我们重点讨论在儿科神经病学背景下过渡护理中可能出现的自主性和情况。我们以临床案例为基础,提出情境化自主的概念,以解决案例中出现的问题,并提出应对过渡护理中那些具有挑战性的情况的思考方式。
更新日期:2020-04-26
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