Development of personalized, stratified follow-up care pathways where care intensity and setting vary with needs could improve cancer survivor outcomes and efficiency of healthcare delivery. Advancing such an approach in the United States requires identification and prioritization of the most pressing research and data needed to create and implement personalized care pathway models. Cancer survivorship research and care experts (N = 39) participated in an in-person workshop on this topic in 2018. Using a modified Delphi technique, a structured, validated system for identifying consensus, an expert panel identified critical research questions related to operationalizing personalized, stratified follow-up care pathways for individuals diagnosed with cancer. Consensus for the top priority research questions was achieved iteratively through three rounds: item generation, item consolidation, and selection of the final list of priority research questions. From the 28 research questions that were generated, 11 research priority questions were identified. The questions were categorized into 4 priority themes: Determining outcome measures for new care pathways; Developing and evaluating new care pathways; Incentivizing new care pathway delivery; and Technology and infrastructure to support self-management. Existing data sources to begin answering questions were also identified. While existing data sources, including cancer registry, electronic medical record and health insurance claims data, can be enhanced to begin addressing some questions, additional research resources are needed to address these priority questions.

中文翻译：

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个性化癌症随访护理途径：研究重点的德尔菲共识。

开发个性化，分层的后续护理途径，使护理强度和环境随需求而变化，可以改善癌症幸存者的预后并提高医疗服务的效率。在美国，要推进这种方法，就需要确定和确定创建和实施个性化护理途径模型所需的最紧迫的研究和数据的优先级。癌症幸存者研究和护理专家（N = 39）于2018年参加了有关该主题的现场研讨会。使用改进的Delphi技术（一种用于确认共识的结构化且经过验证的系统），一个专家小组确定了与个性化操作相关的关键研究问题，针对诊断为癌症的个体的分层随访护理途径。通过三轮反复地达成了对最优先研究问题的共识：项目生成，项目合并和优先研究问题的最终列表的选择。从产生的28个研究问题中，确定了11个研究优先问题。这些问题分为四个优先主题：确定新护理途径的结果指标；开发和评估新的护理途径；鼓励提供新的护理途径；技术和基础架构以支持自我管理。还确定了开始回答问题的现有数据源。尽管可以增强现有数据源（包括癌症注册中心，电子病历和健康保险理赔数据）以开始解决一些问题，