当前位置: X-MOL 学术BMC Palliat. Care › 论文详情
Our official English website, www.x-mol.net, welcomes your feedback! (Note: you will need to create a separate account there.)
Disseminating research findings using a massive online open course for maximising impact and developing recommendations for practice.
BMC Palliative Care ( IF 3.1 ) Pub Date : 2020-04-22 , DOI: 10.1186/s12904-020-00564-7
Nancy Preston 1 , Jeroen Hasselaar 2 , Sean Hughes 1 , Alex Kaley 3 , Lisa Linge-Dahl 4 , Ildiko Radvanyi 5 , Phil Tubman 3 , Karen Van Beek 6 , Sandra Varey 1 , Sheila Payne 1
Affiliation  

BACKGROUND Developing recommendations for how we deliver healthcare is often left to leading experts in a field. Findings from the Integrated Palliative Care in cancer and chronic conditions (InSup-C) study, which aimed to identify best practice in integrated palliative care in cancer, chronic obstructive pulmonary disease (COPD) and heart failure, led to recommendations developed through an expert consultation process. We also wanted to develop these recommendations further with participants who were largely clinicians and members of the public. METHODS Results from the InSup-C study were disseminated through a three-week massive open online course (MOOC) which ran in 2016, 2017 and 2019. The first course helped develop the final recommendations, which were ranked by MOOC participants in the subsequent courses. MOOC participants were predominantly clinicians, but also academics and members of the public. They rated how important each recommendation was on a 9 point scale (9 most important). Descriptive statistics were used to analyse the ratings. The results were compared to findings from the consultation. RESULTS Five hundred fifteen completed the last part of the course where the recommendations were ranked, of which 195 (38%) completed the ratings. The top recommendations related to: need to expand palliative care to non-malignant conditions; palliative care needs to include different dimensions of care including physical, psychological and spiritual; policies and regulations assessments should be made regularly; palliative care integration should be mandatory; and there should be greater availability of medicines. These differed compared to the top ranked recommendations by the consultation panel in relation to the importance of leadership and policy making. This may indicate that clinicians are more focused on daily care rather than the (inter) national agenda. CONCLUSIONS Whilst both sets of recommendations are important, our study shows that we need to include the views of clinicians and the public rather than rely upon leading expert opinion alone. To keep recommendations fresh we need both the input of clinicians, the public and experts. When disseminating findings, MOOCs offer a useful way to gain greater reach with clinicians and the public, and importantly could be a vehicle to validate recommendations made by leading expert panels.

中文翻译:

使用大规模的在线公开课程传播研究结果,以最大程度地发挥影响并为实践提供建议。

背景技术关于如何提供医疗保健的建议通常留给该领域的领先专家。癌症和慢性病综合姑息治疗(InSup-C)研究的发现旨在确定癌症,慢性阻塞性肺疾病(COPD)和心力衰竭的综合姑息治疗的最佳实践,并通过专家咨询得出了建议处理。我们还希望与主要是临床医生和公众的参与者进一步制定这些建议。方法InSup-C研究的结果通过为期三周的大规模在线公开课程(MOOC)进行传播,该课程于2016年,2017年和2019年进行。第一门课程有助于制定最终建议,MOOC参与者在随后的课程中对其进行了排名。MOOC的参与者主要是临床医生,也是学者和公众。他们在9分制中评估了每个建议的重要性(其中9个最为重要)。描述性统计数据用于分析评级。将结果与咨询结果进行比较。结果515人完成了对建议进行排名的课程的最后部分,其中195位(38%)完成了评分。首要建议涉及:需要将姑息治疗扩大到非恶性疾病;姑息治疗需要包括身体,心理和精神方面的不同方面的照顾;应定期进行政策法规评估;姑息治疗整合应该是强制性的;并且应该有更多的药物可供使用。与领导小组和决策制定的重要性相比,咨询小组将这些建议与排名最高的建议相比有所不同。这可能表明临床医生更多地关注日常护理而非国家间议程。结论虽然这两套建议都很重要,但我们的研究表明,我们需要包括临床医生和公众的意见,而不是仅依靠领先的专家意见。为了保持最新建议,我们需要临床医生,公众和专家的意见。在传播调查结果时,MOOC提供了一种有用的方式来扩大与临床医生和公众之间的联系,并且重要的是可以作为验证领先专家小组提出的建议的工具。这可能表明临床医生更多地关注日常护理而非国家间议程。结论虽然这两套建议都很重要,但我们的研究表明,我们需要包括临床医生和公众的意见,而不是仅依靠领先的专家意见。为了保持最新建议,我们需要临床医生,公众和专家的意见。在传播调查结果时,MOOC提供了一种有用的方式来扩大与临床医生和公众之间的联系,并且重要的是可以作为验证领先专家小组提出的建议的工具。这可能表明临床医生更多地关注日常护理而非国家间议程。结论虽然这两套建议都很重要,但我们的研究表明,我们需要包括临床医生和公众的意见,而不是仅依靠领先的专家意见。为了保持最新建议,我们需要临床医生,公众和专家的意见。在传播调查结果时,MOOC提供了一种有用的方式来扩大与临床医生和公众之间的联系,并且重要的是可以作为验证领先专家小组提出的建议的工具。我们的研究表明,我们需要包括临床医生和公众的意见,而不是仅依靠领先的专家意见。为了保持最新建议,我们需要临床医生,公众和专家的意见。在传播调查结果时,MOOC提供了一种有用的方式来扩大与临床医生和公众之间的联系,并且重要的是可以作为验证领先专家小组提出的建议的工具。我们的研究表明,我们需要包括临床医生和公众的意见,而不是仅依靠领先的专家意见。为了保持最新建议,我们需要临床医生,公众和专家的意见。在传播调查结果时,MOOC提供了一种有用的方式来扩大与临床医生和公众之间的联系,并且重要的是可以作为验证领先专家小组提出的建议的工具。
更新日期:2020-04-23
down
wechat
bug