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Exploring experiences and expectations of prenatal health care and genetic counseling/testing in immigrant Latinas.
Journal of Genetic Counseling ( IF 1.9 ) Pub Date : 2020-04-17 , DOI: 10.1002/jgc4.1261
Georgiann Garza 1 , Priscila Hodges-Delgado 1, 2 , Jennifer Hoskovec 1, 2 , Guadalupe Palos 3 , Chelsea Wagner 1, 2 , Nikolaos Zacharias 1, 2 , Sarah J Noblin 1, 2
Affiliation  

As the Latino population of the United States continues to increase, the specific needs of Latinos in genetic counseling continue to be unmet. Using culturally tailored genetic counseling responsive to the needs of the patient can assist in building rapport in genetic counseling sessions. We aimed to investigate the relationship between acculturation, prenatal care, genetic testing experiences, and expectations for prenatal care in an immigrant Latino population. A total of 20 Spanish‐speaking, pregnant Latinas from various Latin American countries were interviewed after completing a prenatal genetic counseling session. The semi‐structured phone interview included questions about the participants’ experiences with genetic counseling/testing, prenatal health care in their home country, their current prenatal care in the United States, and information they felt to be important to know during their pregnancy. Although this study showed no statistically significant associations between acculturation, prenatal care, and genetic counseling/testing experiences, six significant content domains were identified as relevant to the participants. Overall, we found that immigrant Latinas desire to know prenatal risk information to help them prepare, relieve guilt, and help make screening/testing/family planning decisions. These Latinas reported the genetic counselor provided confidence, a sense of autonomy, and empowerment, for them to make their own decisions regarding prenatal screening/testing. The participants also spoke about stressors unique to the immigrant population, most notably being away from their older children and other family members. Identifying relevant factors about the lived experience of this population can help genetic counselors better address possible needs, feelings of guilt, and/or isolation and identifying women who could benefit from group‐based prenatal care, support groups, or referrals to social work.

中文翻译:

探索移民拉丁美洲人的产前保健和遗传咨询/测试的经验和期望。

随着美国拉丁裔人口的不断增加,拉丁裔在基因咨询方面的特殊需求仍未得到满足。使用根据患者需求进行文化定制的遗传咨询可以帮助在遗传咨询会议中建立融洽的关系。我们的目的是调查拉丁裔移民的适应能力,产前护理,基因检测经验与对产前护理的期望之间的关系。在完成产前遗传咨询后,来自拉丁美洲各个国家的总共20名讲西班牙语的拉丁美洲孕妇接受了采访。半结构化电话采访包括以下问题:参与者的遗传咨询/测试经验,其母国的产前保健,他们目前在美国的产前保健,和他们认为在怀孕期间重要的信息。尽管这项研究表明在适应性,产前护理和遗传咨询/测试经验之间没有统计学上的显着相关性,但是六个重要的内容领域被确定与参与者相关。总体而言,我们发现移民拉丁裔渴望了解产前风险信息,以帮助他们准备,减轻内感,并帮助进行筛查/测试/计划生育决策。这些拉美裔人报告说,遗传咨询师为他们就产前筛查/测试做出自己的决定提供了信心,自主感和授权。与会者还谈到了移民人口所特有的压力源,最明显的是远离大孩子和其他家庭成员。
更新日期:2020-04-17
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