Emerging adulthood, a distinct developmental period between ages 18 and 29 years, comprises five features: identity exploration, experimentation/possibilities, negativity/instability regarding one's outlook, self‐focus, and feeling in‐between adolescence and adulthood. A growing literature examines the impact of genetic conditions on individuals who chronologically fit the emerging adulthood period. This systematized literature review uses the emerging adulthood theory to determine whether individuals living with or at‐risk for a genetic condition experience the features of this period as well as similarities and differences between these two groups. A literature search yielded 1,303 peer‐reviewed papers from the 17 years since emerging adulthood theory was published. Ten papers met inclusion criteria—five for those Living With a genetic condition (e.g., cystic fibrosis) and five for those At‐Risk for a genetic condition (e.g., hereditary breast and ovarian cancer). Content analysis yielded themes consistent with the five emerging adulthood features for both individuals Living With and At‐Risk for genetic conditions. Negativity/instability was most prevalent, and feeling in‐between was least prevalent in both groups. Results further suggest unique challenges related to one's genetic conditions/risk with respect to independence (from family, healthcare providers), career/education, relationships/social life, family planning, and life perspective experiences. Salient differences were apparent between the groups in their experiences of the emerging adulthood features. For instance, Living With individuals reported challenges concerning their ongoing physical symptoms, whereas At‐Risk individuals reported challenges regarding genetic testing decisions and anticipation of physical symptoms. Thus, emerging adults Living With and At‐Risk for genetic conditions appear to experience the main emerging adulthood features, but they face unique challenges related to their genetic conditions/risk. Understanding emerging adults’ experiences can aid genetic counselors in addressing their specific concerns.

中文翻译：

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对Arnett处于成年阶段并与遗传病有生命或处于遗传风险中的个体的经验进行系统评价

新兴的成年期是一个介于18至29岁之间的独特发展时期，它包括五个特征：身份探索，实验/可能性，对人的看法的否定性/不稳定，自我专注以及青春期和成年期之间的感觉。越来越多的文献研究了遗传条件对按时间顺序适合新兴成年期的个体的影响。这篇系统化的文献综述使用新兴的成年理论来确定患有遗传病或处于遗传病风险中的个体是否经历了这一时期的特征以及这两组之间的异同。自新兴成人理论发表以来的17年间，文献检索产生了1,303篇经过同行评审的论文。十篇论文符合纳入标准，其中五篇符合标准生活与遗传性疾病（如囊性纤维化）和五个对那些面对风险的遗传性疾病（如遗传性乳腺癌和卵巢癌）。内容分析得出的主题与遗传条件下生活在一起和有风险的个人的五个新兴成年特征一致。负性/不稳定性最普遍，两组之间的感觉最不普遍。结果进一步表明，与一个人的遗传状况/风险有关的独特挑战（独立于（家庭，医疗保健提供者）），职业/教育，人际关系/社会生活，计划生育和生活视角经验。两组之间在新兴的成年特征方面的经验差异明显。例如，与人同住个人报告了有关其持续出现的身体症状的挑战，而有风险的人报告了有关基因检测决定和身体症状预期的挑战。因此，新兴的成年人患有和面对风险的遗传条件似乎体验到的主要新兴成年期的特点，但他们面对与他们的遗传疾病/风险独特的挑战。了解新兴成年人的经历可以帮助遗传咨询师解决他们的特殊问题。