BACKGROUND Prostate-Specific Antigen (PSA) screening for early detection of prostate cancer (PCa) may prevent some cancer deaths, but also may miss some cancers or lead to unnecessary and potentially harmful treatment. Therefore, involving patients in decision-making about PSA screening is recommended. However, we know little about the attitude of men regarding participation in decisions about PSA screening and how to assess such attitudes. The purpose of this paper is to describe patient and public participation in the development of a national, web-based case vignette survey for studying men's view on participation in decision-making about PSA screening. METHODS The project group developed a first draft plan for the survey, its vignettes and choice of measurements. This included multiple vignette variants representing various levels of patient participation in decision-making about PSA screening with different outcomes. Additionally, it included questions on respondents' satisfaction with imagined courses of health care, their propensity to initiate a malpractice complaint, their own health care experiences, socio-demography, personality, and preferences for control regarding health care decision-making. Following feedback from a workshop with academic peers on the draft plan, a group of 30 adult men was engaged to help develop case vignette versions and questionnaire items by providing feedback on structure, comprehension, response patterns, and time required to complete the survey. Furthermore, a panel of three patients with PCa experience was assembled to assist development through a separate review-and-feedback process. RESULTS Based on reviews of survey drafts, the large group made further suggestions about construction of the survey (e.g. clarification and modification of case vignette versions, deletion of items and adjustment of wording, instructions to guide respondents, replacement of technical terms, and optimization of sequence of survey elements). The patient panel ensured fine-tuning of vignette versions and questionnaire items and helped review the internet version of the survey. CONCLUSIONS Patient and public involvement during various phases of the survey development helped modify and refine survey structure and content. The survey exemplifies a way to measure health care users' satisfaction with imagined courses of health care and wish to complain, taking into account their characteristics.

中文翻译：

---

男性对参与前列腺特异性抗原（PSA）筛查决策的看法：患者和公众参与调查的制定。

背景技术用于前列腺癌（PCa）的早期检测的前列腺特异性抗原（PSA）筛查可以预防一些癌症死亡，但是也可以错过一些癌症或导致不必要的和潜在的有害治疗。因此，建议让患者参与PSA筛查的决策。但是，我们对男人对参与PSA筛查决策的态度以及如何评估这种态度了解甚少。本文的目的是描述患者和公众参与基于网络的全国案例小插图调查的发展过程，以调查男性对参与PSA筛查决策的看法。方法项目组为调查，晕影和测量选择制定了初步计划草案。其中包括多个小插图变体，代表不同水平的患者参与有关PSA筛查的决策过程，结果不同。此外，它还包括以下问题：受访者对想象中的医疗保健课程的满意度，他们发起医疗事故投诉的倾向，他们自己的医疗保健经验，社会人口统计学，个性以及对医疗保健决策的控制偏好。在与学术同行就计划草案举行的研讨会的反馈意见之后，由30名成年男子组成的小组通过提供有关完成调查所需的结构，理解，响应方式和时间的反馈意见，来帮助开发案例插图和问卷项目。此外，由三位具有PCa经验的患者组成一个小组，以通过单独的审查和反馈过程来协助发展。结果基于对调查草案的审查，该大型小组对调查的结构提出了进一步的建议（例如，对案例插图的澄清和修改，项目的删除和措辞的调整，指导受访者的说明，替换技术术语以及优化调查问卷的方法）。调查元素的顺序）。患者小组确保对小插图版本和问卷项目进行微调，并帮助审查了调查的互联网版本。结论在调查发展的各个阶段，患者和公众的参与有助于修改和完善调查的结构和内容。该调查示例了一种衡量医疗保健用户的健康状况的方法。