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Outcomes in patients with chronic uveitis: which factors matter to patients? A qualitative study
BMC Ophthalmology ( IF 2 ) Pub Date : 2020-03-30 , DOI: 10.1186/s12886-020-01388-y
Aline C. Stolk-Vos , Hamasa Kasigar , Karlijn J. Nijmeijer , Tom O. Missotten , Jan J. Busschbach , Joris J. van de Klundert , Leonieke W. Kranenburg

Outcome measurements currently used in chronic uveitis care fail to cover the full patient perspective. The aim of this study is to develop a conceptual model of the factors that adult patients with chronic uveitis consider to be important when evaluating the impact of their disease and treatment. A qualitative study design was used. Twenty chronic uveitis patients were recruited to participate in two focus groups. Data were transcribed verbatim and analysed using thematic analysis in ATLAS.ti. Coding of the transcripts resulted in a total of 19 codes divided over five themes: 1) disease symptoms and treatment; 2) diagnosis and treatment process; 3) impact on daily functioning; 4) emotional impact; and 5) treatment success factors. The conceptual model resulting from this study can contribute to the development of future uveitis specific measures in adults.

中文翻译:

慢性葡萄膜炎患者的结局:哪些因素对患者重要?定性研究

当前在慢性葡萄膜炎护理中使用的结果测量无法覆盖整个患者的视野。这项研究的目的是建立一个概念模型,说明成年慢性葡萄膜炎患者在评估其疾病和治疗的影响时认为重要的因素。使用定性研究设计。招募了20名慢性葡萄膜炎患者参加了两个焦点小组。逐字记录数据并在ATLAS.ti中使用主题分析进行分析。笔录的编码产生了总共19个代码,分为五个主题:1)疾病症状和治疗;2)诊治过程;3)对日常运作的影响;4)情感影响;5)治疗成功的因素。
更新日期:2020-04-22
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