Objective: To provide an overview of clinical assessments and diagnostic tools, self-report measures (SRMs) and data sets used in neurogenic bladder and bowel (NBB) dysfunction and recommendations for their use with persons with spinal cord injury /disease (SCI/D).Methods: Experts in SCI/D conducted literature reviews, compiled a list of NBB related assessments and measures, reviewed their psychometric properties, discussed their use in SCI/D and issued recommendations for the National Institutes of Health (NIH), National Institute of Neurological Disorders and Stroke (NINDS) Common Data Elements (CDEs) guidelines.Results: Clinical assessments included 15 objective tests and diagnostic tools for neurogenic bladder and 12 for neurogenic bowel. Following a two-phase evaluation, eight SRMs were selected for final review with the Qualiveen and Short-Form (SF) Qualiveen and the Neurogenic Bowel Dysfunction Score (NBDS) being recommended as supplemental, highly-recommended due to their strong psychometrics and extensive use in SCI/D. Two datasets and other SRM measures were recommended as supplemental.Conclusion: There is no one single measure that can be used to assess NBB dysfunction across all clinical research studies. Clinical and diagnostic tools are here recommended based on specific medical needs of the person with SCI/D. Following the CDE for SCI studies guidelines, we recommend both the SF-Qualiveen for bladder and the NBDS for bowel as relatively short measures with strong psychometrics. Other measures are also recommended. A combination of assessment tools (objective and subjective) to be used jointly across the spectrum of care seems critical to best capture changes related to NBB and develop better treatments.

中文翻译：

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评估脊髓损伤和/或疾病后神经源性膀胱和肠道功能障碍的建议。

目的：提供用于神经源性膀胱和肠道（NBB）功能障碍的临床评估和诊断工具，自我报告测量（SRM）和数据集的概述，以及对脊髓损伤/疾病（SCI / D）患者使用的建议）方法：SCI / D专家进行了文献综述，整理了NBB相关评估和措施清单，审查了其心理测量特性，讨论了其在SCI / D中的用途，并向美国国立卫生研究院（NIH），美国国立卫生研究院（NIH）提出了建议结果：临床评估包括针对神经源性膀胱的15项客观测试和诊断工具以及针对神经源性肠的12项临床评估。经过两个阶段的评估，选择了8个SRM进行最终审查，其中合格和简短（SF）合格和神经源性肠功能障碍评分（NBDS）被推荐为补充，由于其强大的心理计量学和在SCI / D中的广泛使用，因此被高度推荐。建议使用两个数据集和其他SRM度量作为补充。结论：在所有临床研究中，没有一种度量可用来评估NBB功能障碍。在此，建议根据SCI / D患者的特定医疗需求使用临床和诊断工具。遵循CDE for SCI研究指南，我们建议将SF-Qualiveen用于膀胱，将NBDS用于肠，这是相对短期的措施，具有很强的心理测度。还建议采取其他措施。