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Adopting a collaborative approach in developing a prehabilitation program for patients with prostate cancer utilising experience-based co-design methodology.
Supportive Care in Cancer ( IF 3.1 ) Pub Date : 2020-02-18 , DOI: 10.1007/s00520-020-05341-z
Clarice Y Tang 1, 2, 3 , Monica Turczyniak 1 , Alesha Sayner 1 , Kimberley Haines 1 , Sally Butzkueven 4 , Helen E O'Connell 5, 6
Affiliation  

Purpose

Engaging patients in a prehabilitation program prior to commencement of cancer treatment is a known challenge. Utilising experience-based co-design (EBCD) methodology, this study aimed to explore the prostate cancer treatment journey from the perspectives of the patient and health professionals and collaboratively develop a prehabilitation program for patients with prostate cancer.

Methods

EBCD was utilised for this study. Patients, support persons and health professionals were selectively identified and recruited from two metropolitan health services in Melbourne. Selection criteria included (i) recent clinical/patient experience with prostate cancer treatment and (ii) willingness to share positive experiences and challenges in two 2-hour face-to-face workshops. Findings from these workshops were thematically analysed to identify key themes addressing aims of the study.

Results

Twenty participants including eight patients, one support person and 11 health professionals were recruited. Four key touchpoints were identified. All participants acknowledged positive interactions between patients and health professionals. Patients often described the journey as lonely, stressful and frustrating especially prior to commencement of treatment. A lack of a consistent approach in identifying and preparing patients with prostate cancer for treatment was identified. A structured prehabilitation program was proposed as a solution. Practical ideas to be implemented including timing of commencement, educational content and strategies to boost engagement were formulated.

Conclusions

The findings from the study provided practical guidance for future clinicians when implementing a prehabilitation program. Future study is required to evaluate the effectiveness of such a prehabilitation program in improving patient engagement and preparedness for prostate cancer treatment.



中文翻译:

在采用基于经验的协同设计方法为前列腺癌患者制定康复前计划时采用协作方法。

目的

在开始癌症治疗之前让患者参与康复计划是一项已知的挑战。这项研究采用基于经验的协同设计(EBCD)方法,旨在从患者和卫生专业人员的角度探索前列腺癌的治疗历程,并共同开发针对前列腺癌患者的康复计划。

方法

EBCD用于这项研究。从墨尔本的两个大都市卫生服务机构中有选择地确定并招募了患者,支持人员和卫生专业人员。选择标准包括(i)最近在前列腺癌治疗方面的临床/患者经验,以及(ii)愿意在两个2小时的面对面研讨会中分享积极的经验和挑战。对这些研讨会的发现进行了主题分析,以找出解决研究目标的关键主题。

结果

招募了20名参与者,包括8名患者,1名支持人员和11名卫生专业人员。确定了四个关键接触点。所有参与者都承认患者与卫生专业人员之间的积极互动。患者通常将旅程形容为孤独,压力和沮丧,尤其是在开始治疗之前。鉴定出缺乏识别和准备治疗前列腺癌患者的一致方法。提出了结构化的康复计划作为解决方案。制定了将要实施的实用想法,包括开始时间,教育内容和促进参与的策略。

结论

该研究结果为未来的临床医生实施康复计划提供了实践指导。需要进行进一步的研究来评估这种预备计划在改善患者参与度和前列腺癌治疗准备方面的有效性。

更新日期:2020-02-18
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