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Agreement and differences regarding family functioning between patients with acquired brain injury and their partners.
Brain Injury ( IF 1.9 ) Pub Date : 2020-02-17 , DOI: 10.1080/02699052.2020.1725978
Vincent Cox 1 , Marijn Mulder 2, 3 , Rinske Nijland 3 , Vera Schepers 1, 4 , Erwin Van Wegen 2, 5 , Caroline Van Heugten 6, 7, 8 , Gert Kwakkel 2, 3, 5, 9 , Johanna Visser-Meily 1, 4
Affiliation  

PRIMARY OBJECTIVE To investigate the level of agreement and differences regarding the perception of family functioning between patients with acquired brain injury and their partners. Our hypothesis was that patients would report better family functioning than their partners. RESEARCH DESIGN Cross-sectional studyMethods and Procedures: Baseline data were used from 77 patient-partner dyads (87.0% stroke) who were participating in the ongoing CARE4Patient and CARE4Carer trials. Family functioning was assessed using the General Functioning subscale of the McMaster Family Assessment Device (FAD-GF). Agreement was assessed with intraclass correlation coefficient, a Bland-Altman plot, percentages absolute agreement and weighted kappa values. Differences were tested with Wilcoxon signed-rank tests. MAIN OUTCOMES AND RESULTS Patients and their partners differed in their perception of family functioning. Within-dyad agreement was poor regarding the overall FAD-GF scores with partners reporting significantly poorer family functioning compared to the patients (32.5% versus 18.2%). Agreement regarding the individual items ranged from slight to moderate. CONCLUSIONS Health care professionals should assess family functioning after stroke in both patients and their partners, and any discrepancies should be discussed with both members of the patient-partner dyad.

中文翻译:

获得性脑损伤患者与其伴侣之间关于家庭功能的共识和差异。

主要目的 调查获得性脑损伤患者与其伴侣之间关于家庭功能感知的一致性和差异水平。我们的假设是患者会报告比他们的伴侣更好的家庭功能。研究设计横断面研究方法和程序:使用来自参与正在进行的 CARE4Patient 和 CARE4Carer 试验的 77 名患者-伴侣二元组(87.0% 中风)的基线数据。使用 McMaster 家庭评估装置 (FAD-GF) 的一般功能分量表评估家庭功能。一致性通过组内相关系数、Bland-Altman 图、绝对一致性百分比和加权 kappa 值进行评估。使用 Wilcoxon 符号秩检验测试差异。主要结果和结果 患者及其伴侣对家庭功能的看法不同。与患者相比,伴侣报告的家庭功能明显较差(32.5% 对 18.2%),整体 FAD-GF 分数的内部一致性较差。关于个别项目的协议从轻微到中等不等。结论 卫生保健专业人员应评估患者及其伴侣中风后的家庭功能,任何差异都应与患者-伴侣二元组成员讨论。关于个别项目的协议从轻微到中等不等。结论 卫生保健专业人员应评估患者及其伴侣中风后的家庭功能,任何差异都应与患者-伴侣二元组成员讨论。关于个别项目的协议从轻微到中等不等。结论 卫生保健专业人员应评估患者及其伴侣在卒中后的家庭功能,任何差异均应与患者-伴侣二人组成员讨论。
更新日期:2020-02-17
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