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Severity of military traumatic brain injury influences caregiver health-related quality of life.
Rehabilitation Psychology ( IF 3.713 ) Pub Date : 2020-11-01 , DOI: 10.1037/rep0000306
Tracey A Brickell 1 , Bridget A Cotner 2 , Louis M French 1 , Noelle E Carlozzi 3 , Danielle R O'Connor 2 , Risa Nakase-Richardson 4 , Rael T Lange 1
Affiliation  

PURPOSE/OBJECTIVE To examine the influence of traumatic brain injury (TBI) severity on the health-related quality of life of caregivers providing care to service members/veterans (SMV) following a TBI. Research Method/Design: Thirty caregivers (90.0% female; 70.0% spouse; age: M = 39.5 years, SD = 10.7) of SMVs who sustained a mild, moderate, severe, or penetrating TBI were recruited from Walter Reed National Military Medical Center and via community outreach to participate in one of six focus groups. Caregivers were classified into 3 TBI severity/caregiver groups: (a) moderate/severe/penetrating TBI caregiver group (n = 11); (b) mild TBI caregiver group (n = 10); and (c) equivocal TBI caregiver group (n = 9). Thematic analysis using a constant comparative approach was conducted with qualitative analysis software to identify common themes across the 3 severity/caregiver groups. RESULTS Eleven themes emerged: no time for self/needs last (83.3%), poor physical health (80.0%), increased stress/anxiety (76.7%), social isolation/loneliness (66.7%), lack of access to services (50.0%), impact on family life (46.7%), sleep issues (46.7%), finances/employment (36.7%), depression (30.0%), exhaustion (30.0%), and anger (16.7%). Exploratory pairwise comparisons revealed a higher proportion of the moderate/severe/penetrating TBI group endorsed 7 of the 11 themes (no time for self/needs last, increased stress/anxiety, impact on family life, sleep issues, finances/employment, exhaustion, anger, and increased stress/anxiety) compared with the other 2 groups. CONCLUSIONS/IMPLICATIONS It is important that caregivers of SMVs receive long-term support in their caregiving and parenting roles. Further work is required to understand the challenges caregivers experience in accessing services they need and how to effectively meet their needs across the care continuum. (PsycINFO Database Record (c) 2020 APA, all rights reserved).

中文翻译:

军事创伤性脑损伤的严重程度影响护理人员与健康相关的生活质量。

目的/目的 探讨创伤性脑损伤 (TBI) 严重程度对为 TBI 后服役人员/退伍军人 (SMV) 提供护理的护理人员的健康相关生活质量的影响。研究方法/设计:从沃尔特里德国家军事医疗中心招募了 30 名患有轻度、中度、重度或穿透性 TBI 的 SMV 护理人员(90.0% 为女性;70.0% 为配偶;年龄:M = 39.5 岁,SD = 10.7)并通过社区外展参与六个焦点小组之一。护理人员被分为 3 个 TBI 严重程度/护理人员组:(a) 中度/重度/穿透性 TBI 护理人员组 (n = 11);(b) 轻度 TBI 护理人员组 (n = 10);(c) 模棱两可的 TBI 护理人员组 (n = 9)。使用定性分析软件进行持续比较方法的主题分析,以确定 3 个严重程度/护理人员组的共同主题。结果 出现了 11 个主题:没有时间照顾自己/需要最后 (83.3%)、身体健康状况不佳 (80.0%)、压力/焦虑增加 (76.7%)、社会孤立/孤独 (66.7%)、缺乏获得服务的机会 (50.0) %)、对家庭生活的影响(46.7%)、睡眠问题(46.7%)、财务/就业(36.7%)、抑郁(30.0%)、疲惫(30.0%)和愤怒(16.7%)。探索性配对比较显示,中度/重度/穿透性 TBI 组中较高比例的人赞同 11 个主题中的 7 个(没有时间自我/最后的需求、压力/焦虑增加、对家庭生活的影响、睡眠问题、财务/就业、疲惫、与其他两组相比,愤怒和压力/焦虑增加)。结论/启示 SMV 的照顾者在其照顾和养育角色中获得长期支持非常重要。需要进一步的工作来了解护理人员在获得所需服务时遇到的挑战以及如何在整个护理过程中有效满足他们的需求。(PsycINFO 数据库记录 (c) 2020 APA,保留所有权利)。
更新日期:2020-11-01
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