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Parenting Science Gang: radical co-creation of research projects led by parents of young children
Research Involvement and Engagement Pub Date : 2020-03-02 , DOI: 10.1186/s40900-020-0181-z
Sophia Collins 1 , Rebecca Brueton 2 , Tamasin Greenough Graham 3 , Stephanie Organ 4 , Amy Strother 5 , Sarah Elizabeth West 6 , Jean McKendree 6
Affiliation  

Parents are increasingly searching online for information supported by research but can find it difficult to identify results relevant to their own experiences. More troublingly, a number of studies indicate that parenting information found online often can be misleading or wrong. The goal of the Parenting Science Gang (PSG) project was to use the power of the Internet to help parents ask questions they wanted to have answered by scientific research and to feel confident in assessing research evidence. By using Facebook to recruit groups and facilitate interactions, PSG was able to engage fully the target public of parents of young children in the radical co-production of scientific studies, while not creating an undue burden on time or restricting participants due to disability, financial status or location. By giving parents true partnership and control of creation of projects, PSG ensured that the chosen questions were ones that were of most relevance and interest to them. This paper presents a summary of eight projects, with three in more detail, designed and implemented by PSG Facebook groups in collaboration with experts. Most projects had health related themes, often prompted by dissatisfaction with treatment of parents by health professionals or by feelings of being marginalised by pregnancy and motherhood, as well as by the lack of evidence for their questions and concerns. The PSG approach meant that these frustrations were channelled into actions. All eight of the PSG groups engaged in meaningful interactions with experts and co-produced studies with the groups defining the questions of interest. This radically user-led design meant that the PSG staff and the collaborating experts had to live with a high degree of uncertainty. Nevertheless, PSG achieved its goal of academically productive, truly co-produced projects, but as important were the positive effects it had on many of the participants, both parents and experts. At the point of writing this paper, PSG projects have led to outputs including at least eight papers published, in press or in preparation, seven conference presentations, testimony to the Infant Feeding All-Party Parliamentary Group, and with more to come.

中文翻译:

育儿科学帮:由幼儿父母领导的研究项目的激进共同创造

父母越来越多地在网上搜索研究支持的信息,但很难确定与他们自己的经历相关的结果。更令人不安的是,许多研究表明,在网上找到的育儿信息往往具有误导性或错误性。育儿科学帮 (PSG) 项目的目标是利用互联网的力量帮助父母提出他们希望通过科学研究得到回答的问题,并在评估研究证据时充满信心。通过使用 Facebook 来招募团体并促进互动,PSG 能够让幼儿父母的目标公众充分参与科学研究的激进合作制作,同时不会因残疾、经济状况而造成过度的时间负担或限制参与者状态或位置。通过给予家长真正的合作伙伴关系和对项目创建的控制权,PSG 确保选择的问题是与他们最相关和最感兴趣的问题。本文总结了八个项目,其中三个更详细,由 PSG Facebook 小组与专家合作设计和实施。大多数项目都有与健康相关的主题,通常是由于对卫生专业人员对父母的待遇不满意,或者因为怀孕和母亲被边缘化的感觉,以及他们的问题和担忧缺乏证据。PSG 方法意味着将这些挫败感转化为行动。所有八个 PSG 小组都与专家进行了有意义的互动,并与定义感兴趣问题的小组共同开展了研究。这种完全以用户为主导的设计意味着 PSG 员工和合作专家不得不忍受高度的不确定性。尽管如此,PSG 实现了其学术成果、真正共同制作项目的目标,但同样重要的是它对许多参与者(包括父母和专家)产生的积极影响。在撰写本文时,PSG 项目已产生产出,其中包括至少八篇已发表的论文(正在出版或准备中)、七次会议演讲、对婴儿喂养全党议会小组的证词,以及更多内容。父母和专家。在撰写本文时,PSG 项目已产生产出,其中包括至少八篇已发表的论文(正在出版或准备中)、七次会议演讲、对婴儿喂养全党议会小组的证词,以及更多内容。父母和专家。在撰写本文时,PSG 项目已产生产出,其中包括至少八篇已发表的论文(正在出版或准备中)、七次会议演讲、对婴儿喂养全党议会小组的证词,以及更多内容。
更新日期:2020-04-22
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