This paper addresses the design of hybrid information spaces supporting patients and healthcare providers to have information in common and also, patients to manage privately personal health information. We studied efforts to develop such information spaces by following the design of two Personal Health Record applications and focusing particularly on design tensions that relate to their hybrid role. We identified and grouped tensions along three key themes: control allocation, content origination and user environment localization. For the resolution of tensions, functionality-related decisions were taken by professional design teams during the early design phases. These included the introduction of functionality that enables end-users to create regions with custom characteristics and dynamically adjust the regional boundaries. Delegating to end-users some of the regionalization work entailed in the design of such hybrid spaces points to a design strategy of providing generic enabling environments instead of configuring solutions “a priori” by designers that are external to use settings. Prior research on Personal Health Records mostly emphasizes the challenges of bridging patient and provider perspectives, in our research we shift attention to enabling hybridity and to the roles of designers and end-users for regionalization.

中文翻译：

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在个人与公共之间：混合信息空间的设计

本文介绍了混合信息空间的设计，该空间支持患者和医疗保健提供者拥有共同的信息，也可以使患者管理私人的个人健康信息。我们通过遵循两个个人健康记录应用程序的设计来研究开发此类信息空间的工作，并特别关注与它们的混合角色相关的设计张力。我们根据三个主要主题确定了紧张关系并将其分组：控件分配，内容来源和用户环境本地化。为了解决紧张关系，专业设计团队在早期设计阶段就做出了与功能相关的决定。其中包括引入功能，使最终用户可以创建具有自定义特征的区域并动态调整区域边界。将此类混合空间设计中涉及的一些区域化工作委托给最终用户，这表明了一种设计策略，即提供通用的启用环境，而不是由使用设置外部的设计师“先验”地配置解决方案。先前对“个人健康记录”的研究主要强调将患者和提供者的观点联系起来的挑战，在我们的研究中，我们将注意力转移到实现混合性以及区域化设计者和最终用户的角色上。