Abstract Aims As health systems around the world increasingly look to measure and improve the value of care that they provide to patients, being able to measure the outcomes that matter most to patients is vital. To support the shift towards value-based health care in atrial fibrillation (AF), the International Consortium for Health Outcomes Measurement (ICHOM) assembled an international Working Group (WG) of 30 volunteers, including health professionals and patient representatives to develop a standardized minimum set of outcomes for benchmarking care delivery in clinical settings. Methods and results Using an online-modified Delphi process, outcomes important to patients and health professionals were selected and categorized into (i) long-term consequences of disease outcomes, (ii) complications of treatment outcomes, and (iii) patient-reported outcomes. The WG identified demographic and clinical variables for use as case-mix risk adjusters. These included baseline demographics, comorbidities, cognitive function, date of diagnosis, disease duration, medications prescribed and AF procedures, as well as smoking, body mass index (BMI), alcohol intake, and physical activity. Where appropriate, and for ease of implementation, standardization of outcomes and case-mix variables was achieved using ICD codes. The standard set underwent an open review process in which over 80% of patients surveyed agreed with the outcomes captured by the standard set. Conclusion Implementation of these consensus recommendations could help institutions to monitor, compare and improve the quality and delivery of chronic AF care. Their consistent definition and collection, using ICD codes where applicable, could also broaden the implementation of more patient-centric clinical outcomes research in AF.

中文翻译：

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为心房颤动患者制定一套国际标准的结果测量：国际健康结果测量联盟 (ICHOM) 心房颤动工作组的报告

摘要 目标 随着世界各地的卫生系统越来越多地寻求衡量和提高他们为患者提供的护理的价值，能够衡量对患者最重要的结果至关重要。为了支持心房颤动 (AF) 向基于价值的医疗保健的转变，国际健康结果测量联盟 (ICHOM) 组建了一个由 30 名志愿者组成的国际工作组 (WG)，其中包括卫生专业人员和患者代表，以制定标准化的最低标准一组用于在临床环境中对护理提供进行基准测试的结果。方法和结果 使用在线修改的 Delphi 过程，选择对患者和卫生专业人员重要的结果并将其分类为 (i) 疾病结果的长期后果，(ii) 治疗结果的并发症，(iii) 患者报告的结果。工作组确定了人口统计学和临床​​变量以用作病例组合风险调整因素。这些包括基线人口统计学、合并症、认知功能、诊断日期、疾病持续时间、处方药和房颤程序，以及吸烟、体重指数 (BMI)、酒精摄入量和身体活动。在适当的情况下，为了便于实施，使用 ICD 代码实现了结果和病例组合变量的标准化。标准集经历了一个公开审查过程，其中超过 80% 的接受调查的患者同意标准集捕获的结果。结论 实施这些共识建议可以帮助机构监测、比较和改进慢性 AF 护理的质量和提供。他们一致的定义和集合，